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Yale Bioethics

Summer 2014

2014 Lectures

2014 Seminars

2014 Participants

2014 Lectures

Jonathan Borak, Clinical Professor of Epidemiology & Public Health and Clinical Professor of Medicine, Yale School of Medicine
Physical Environment Meets Social Environment: Implications for Health

R. Douglas Bruce, Assistant Professor of Medicine (AIDS), Yale School of Medicine
Ethical Dilemmas in Research Where Drug Users Are Concerned

Thomas Duffy, Professor of Medicine; Director, Program for Humanities in Medicine, Yale School of Medicine
Reflections on Portraits of an Illness

Roberta R. Friedman, Director of Public Policy, Rudd Center for Food Policy and Obesity
An Overview of Yale University’s Rudd Center for Food
Policy and Obesity

John Grim, Senior Lecturer and Research Scholar, School of Forestry & Environmental Studies, Yale University
Native American Religions: Toward an Environmental Ethic

Michael K. Gusmano, Research Scholar, The Hastings Center; adjunct appointments at Columbia University and Yale University.
                    Leading Issues in Bioethics

          John Hughes, Professor of Internal Medicine (General Medicine), Yale School of Medicine
The Iron Triangle of American Health Care

Marcia Inhorn, William K. Lanham, Jr. Professor of Anthropology and International Affairs; Editor, Journal of Middle East Women’s Studies (JMEWS), Council on Middle East Studies, Yale University
Global Gametes: Reproductive “tourism” and Islamic bioethics in the high-tech Middle East

Shelly Kagan, Professor of Philosophy, Yale University
Applied Ethics and the Distinction between Killing and Letting Die

Dan Kahan, Elizabeth K. Dollard Professor of Law, Yale
University
Science Literacy, Cultural Conflict, & Climate Change

Kaveh Khoshnood, Associate Professor, Yale School of Public Health
Ethical Issues in Student-led Short Term Global Health Research Projects

Harold Koh, Immediate Past Dean and now Sterling Professor of International Law, Yale Law School.  (Professor Koh spent the previous 4 years as the 22nd Legal Adviser in the US Department of State.  Professor Koh is one of the country’s leading experts in public and private international law, national security law, and human rights.)
          Keynote Address at the Banquet - TBA

Susan Kopp, Professor of Health Sciences, Veterinary Technology Program, LaGuardia College, (City University of New York); Affiliated Scholar, Yale Interdisciplinary Center for Bioethics
Ethics, Animals, and the World We Share

 Diane Krause, Professor of Laboratory Medicine, Pathology and Cell Biology, Yale School of Medicine
and
Stephen Latham, Director, Yale’s Bioethics Center
          Embryonic and Adult Stem Cells and Their Potential Clinical Use / Ethical Considerations

Stephen Latham, Director, Yale Center for Bioethics
Bioethics and the Law

          Bandy Lee, Clinician (Psychiatry); Assistant Clinical Professor (Psychiatry), Yale School of Medicine; Co-Founder, Yale University’s Violence and Health Group (Law and Psychiatry Division), Yale School of Medicine
Violence, Its Causes, and Prevention

          Robert J. Levine, Senior Scholar in Research Ethics and Past Co-Director, Interdisciplinary Bioethics Center; Professor of Internal Medicine, Lecturer in Pharmacology, Yale School of Medicine
        Origins of the ethical norms and principles for research
         involving human subjects

          Scott Long, Senior Physician, Connecticut Hospice; Associate Clinical Professor of Internal Medicine, Yale School of Medicine
          Evolution of Hospice in the United States as a Reflection
          of the Times

          Maurice (Jeremiah) Mahoney, Professor of Genetics (Pediatrics); Professor of Obstetrics & Gynecology; Executive Chair, Yale University Institutional Review Boards, Yale School of Medicine
Influencing ("Designing" "Choosing") Characteristics of Your Children When They Are Embryos or Fetuses

Ellen T. Matloff, Research Scientist, Department of Genetics, Yale School of Medicine; Director, Cancer Genetic Counseling, Yale Cancer Center
Direct-to-Consumer Genetic Testing: Helpful, Harmful or Pure Entertainment?

Mark Mercurio, Associate Professor of Pediatrics; Director, Pediatric Ethics Program, Yale School of Medicine; Director, Program for Biomedical Ethics, Yale School of Medicine
                    Ethical Issues in Extreme Prematurity

Thomas Murray, Senior Research Scholar and President Emeritus, The Hastings Center; the Chen Su Lan Centennial Professor at University of Singapore         
          On Ethics, Meanings, and Biomedical Enhancements

Timothy Nelson, Professor of Molecular, Cellular & Developmental Biology, Yale University
Agricultural biotechnology: Potential for synergy between traditional and biotech methods in agriculture and food production

Pasquale Patrizio, Director, Yale Fertility Center, Yale University School of Medicine
and
Paolo Emanuele Levi Setti, Director, Department of Gynaecology and Chair, Humanitas Research Hospital (Rozzano, Milan); Division of Gynaecology and Reproductive Medicine, Humanitas Fertility Center; Professor Adjunct, Department of Obstetrics, Gynecology and Reproductive Sciences, Yale University School of Medicine
Postponement and Preservation of Fertility: Ethical and social implications  

          Matthew T. Riley, PhD Candidate, Drew University; Research Associate and Editor, The Forum on Religion and Ecology at Yale; Curriculum Development, Journey of the Universe.
Religion and Ecology: from Bioethics to Environmental Ethics

    Naomi Rogers, Associate Professor, Section of History of Medicine, Yale School of Medicine; History Department and Women’s, Gender and Sexuality Studies Program, Yale University
Feminist Activism and American Health Politics since 1945

Aaron Rose, Associate Clinical Professor, Department of Ophthalmology and Visual Sciences, Yale School of Medicine; Associate Clinical Professor, Graduate Entry Pre-specialty in Nursing, Yale School of Nursing
The Ethics Of Overseas Surgical Volunteerism

Bennett A. Shaywitz, Charles and Helen Schwab Professor in Dyslexia and Learning Development; Co-Director, Center for Dyslexia and Creativity; Department of Neurology; Section Chief, Department of Pediatrics, Yale School of Medicine

And

Sally E. Shaywitz, The Audrey G. Ratner Professor in Learning Development; Yale University School of Medicine; Co-Director, Yale Center for Dyslexia and Creativity
                    Dyslexia and Creativity

          Frederick Simmons, Assistant Professor of Ethics, Yale Divinity School
The Nature, Sources, and Moral Significance of Human Dignity

Robin Stern, Associate Director, Yale Center for Emotional Intelligence; Associate Research Scientist, Psychology Department, Yale University
TBA

Wendell Wallach, Lecturer and Scholar, Yale Interdisciplinary Center for Bioethics
From Robots to Techno Sapiens: Ethics, law and public
policy in the development of robots and neurotechnologies

John H. Warner, Chairman/Avalon Professor, History of Medicine, Yale School of Medicine; Professor, American Studies Program and Department of History, Yale University
Historical Perspectives on The Tuskegee Syphilis Study and Its Legacies  

          Bruce Wexler, Senior Research Scientist/Scholar and Professor Emeritus, Department of Psychiatry, Yale University School of Medicine
Neuroplasticity, Culture and Society

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2014 Seminars

DISASTERS, LAW AND ETHICS
Seminar Leader: Laura Ballantyne-Brodie, BA, LLB (Hons) GradDip Legal Practice, Monash University, Attorney Baker & McKenzie LLP
Seminar Overview:   The purpose of this course is to introduce major ethical and legal issues that underpin planning and response policies to natural disasters. Among the questions we will examine include: why is this an important topic to examine? What is disaster law? What are some of the different ethical frameworks from which we can examine disaster law issues? What are the ethics of sustainability and how do they relate to disaster law? Should they be considered by policy makers to guide the way we respond to disasters? The course is designed to encourage students to apply different (legal and ethical) frameworks to examine the overarching issues that relate to natural disasters. The seminar is interactive and students will be asked to participate to group and class discussions. No prior knowledge of law is required.  

ETHICS AND PHARMACEUTICALS
Seminar Leader: Justin Oakley, PhD, Associate Professor and Deputy Director of the Monash University Centre for Human Bioethics, Australia
Seminar Overview: Direct-to-consumer advertising of prescription drugs, which is allowed in the United States and New Zealand but prohibited elsewhere, raises a range of important ethical issues that are attracting increasing attention in contemporary bioethics.  Some prominent ethical concerns about pharmaceutical direct to consumer advertising (DTCA) focus on the impact which the evaluative conditioning techniques often used in such advertising can have on the decisions and best interests of patients, and on doctor-patient relationships.  This seminar will investigate these concerns by considering several key arguments against pharmaceutical DTCA, drawing particularly on conceptions of autonomy and recent work in virtue ethics, along with current empirical research on evaluative conditioning and various effects of such advertising.  A different set of ethical concerns about pharmaceuticals is raised by the lack of access to essential medicines in many low-income countries.  The Health Impact Fund is an idea which proposes an innovative way of addressing this problem, by providing financial incentives to pharmaceutical companies to develop new drugs that would treat diseases which are especially prevalent in low-income countries.  This seminar will also consider the merits of this idea, in light of certain contemporary theories of justice.

THE ETHICS OF HUMAN ENHANCEMENT
Seminar Leader: Imre Bárd, MA, MSc, MPhil/PhD Candidate, Research Officer, London School of Economics and Political Science
Seminar Overview:Should biotechnologies be used to improve our physical appearance, strength and stamina? Do cognition enhancing pills and brain stimulation differ from private tutoring, a balanced diet or physical exercise? Should we turn to neuroscience for tools to regulate our emotions, enhance our cognitive abilities and make us kinder, more pro-social and responsible beings? Do parents have an obligation to enhance their children’s biological traits? Who should decide these questions, and how? Enhancement technologies hold out the promise of not only treating diseases but also improving upon healthy human functions. As such they prompt us to reflect on the question of ‘normality’, inviting us to consider the scope of desirable and ethically viable ways of ameliorating the human condition. While mankind has always used technologies to overcome seemingly natural limitations, the deliberate use of science to improve human capacities raises a vast array of abstract philosophical and ethical questions, which at the same time present very practical policy and regulatory challenges. This seminar will introduce students to the broad and multifaceted discussion surrounding human enhancement technologies. The subject provides an opportunity to tackle key notions of bioethics ranging from autonomy, dignity and justice, to resource allocation, risk assessment and medicalization. As is so often the case in bioethics, the topic of human enhancement is a controversial one, which can give rise to polarized opinions and passionate debates that are informed by discussants’ deeply held convictions. The aim of this seminar is that participants come to appreciate the complexity of the issues at stake, learn to reflect on their intuitions, and articulate them as reasoned arguments. Each seminar will focus on one specific area of human enhancement, addressing the most important points of contestation. Sessions will consist of an interactive 30-45 minute lecture and 1 hour of discussion on the basis of assigned readings and students’ preferences. In case of interest, watching movies and documentaries can complement the seminars.

NARRATIVE MEDICINE AND BIOETHICS MEDIATION
Seminar Leader: Shawna Benston, M.A., M.B.E., JD
Seminar Overview: This seminar will explore the relationships among narrative medicine, narrative ethics, and mediation—three seemingly separate disciplines that, in fact, overlap significantly.  A unifying thread, as we shall see, will be the telling and receiving of narrative: how to deliver one’s story and how to hear others’.  This seminar will incorporate both a theoretical aspect, involving close reading of fictional and non-fictional pieces, and a practical aspect, involving the study of mediation techniques and skills.  The course will involve several mediation simulations, in which students will enact clinical scenarios based on real life cases, taking turns serving as "characters" and as the mediator.  The goal of these exercises is to fuse the literary class discussions of narratology, reception, and expression, and how each element emerges in the medical setting.

OBESITY ISSUES AND BIOETHICS
Seminar Leader: Jack Brackney, Masters Candidate, Case Western Reserve University School of Medicine; Research Assistant, Center for Genetic Research, Ethics and Law, Case Western Reserve University School of Medicine
Seminar Overview: Obesity is widely referred to as an epidemic.  Some think obesity is genetic, others behavioral.  Should the government be involved or is it simply a matter of personal choice? Are individuals equipped to make informed decisions? This course explores the terrain of obesity facts and fictions, public heath ethics, and where responsibility lies when it comes to individual health.  The class will analyze case studies, scholarly journal articles, and public policies that are both already in effect and proposed policies regarding obesity and nutrition.  Students will be expected to participate in discussions and case studies, as well as complete brief, assigned readings prior to each session. 

NEUROETHICS   
Seminar Leaders: Lori Bruce, MA, Executive Director, The Connecticut Coalition to Improve End-of-Life Care, Inc., Assistant Director, Summer Institute, Interdisciplinary Center for Bioethics, Yale University, Chair, Community Bioethics Forum, Program for Biomedical Ethics, Yale School of Medicine, Vice-President, Community Voices in Medical Ethics
Evie Marcolini, MD, FACEP, FAAEM, Assistant Professor, Emergency Medicine, Yale School of Medicine; Faculty, Neurocritical Care and Surgical Critical Care
Seminar Overview: This seminar will examine ethical and social issues raised by developments in the neurosciences. Topics will include brain imaging, issues of privacy and stigmatization; cognitive remediation training programs; neuroscience in the courtroom; and pressing developments in pediatric psychiatry and adult neurology.  Guest speakers from Yale School of Medicine will present case studies of pressing issues within these subject areas.

AN INTRODUCTION TO ETHICAL THEORY
Seminar Leader: Stephen M. Campbell, PhD, Assistant Professor of Philosophy and Environmental Studies & Andrew W. Mellon Post-Doctoral Fellow, Department of Philosophy and Religion, Coe College
Seminar Overview: Our lives are full of choices to be made, ranging from trivial day-to-day choices to profound, life-shaping ones. How should we choose? More broadly, how should we live? And why should we live that way? The goal of ethical theory is to arrive at an answer to these daunting but pressing questions. This seminar is a “crash course” to ethical theory. In our six sessions, we will examine and discuss the structure of ethical theories, key concepts in ethics, historically influential ethical theories (including egoism, utilitarianism, Kantianism, and virtue ethics), different methodological approaches to ethics, and various views about human well-being. In each session, there will be time devoted to engaging in ethical argument and theorizing ourselves. In other words, we will do philosophy, and not merely learn about it. Modest supplementary readings will be assigned. No prior experience with philosophy or ethics is required.

HISTORY AND BIOETHICS OF MEDICAL TECHNOLOGIES 
Seminar Leader: Jiin-Yu, PhD, Research Program Coordinator, Berman Institute of Bioethics, Johns Hopkins University
Seminar Overview: Much of modern medicine relies upon the information that technology yields.  Technologies allow health care providers ways of detecting abnormalities within the human body, sometimes without actually opening the body.  They have been used to save and extend lives and provide comfort and assistance. However, technology has also altered how medicine is practiced, restructuring how medicine is organized and institutionalized, reshaping relationships between patients and the health care providers, and raising questions about its use and its limits. This course will examine and discuss selected medical technologies from a historical perspective, focusing both on their development and on their social and ethical contexts.  As a course of this length does not allow a comprehensive examination of medical technologies, the selected technologies were chosen as representations for some of the many ways technology shapes medicine and the questions they raise.  This course is intended to be participatory and interactive so all class members are expected to read the required reading assignments before each class meeting and be prepared to discuss it in class.  Looking through the recommended readings is encouraged.

DISABILITY AND BIOETHICS
Seminar Leader: Elin C. Doval, PhD, Assistant Professor, School of Business, Virginia State University; Assistant Director, Yale University’s Summer Institute in Bioethics
Seminar Overview: The Disability and Bioethics seminar series strives to provide an informed, safe, and caring environment to discuss disability-conscious bioethics from a global perspective. We will discuss Bioethics and Disability models for medical and social decision-making, both sensibly. Through in-depth analysis of selected readings, videos and personal accounts, students will examine social structures and personal experience of disability in law, clinical, community and economic settings. Students who attend this seminar series will: 

  1. Recognize variations in personal and cultural perspectives of people with disabilities and current bioethical dialogue.
  2. Be aware of philosophical frameworks employed in bioethical considerations on disability.
  3. Explore medical and social perspectives in decision-making processes affecting people with disability.

STEM CELLS, GENETICS, AND ENHANCEMENT
Seminar Leader: Alex Dubov, MDiv; PhD Candidate, Duquesne University
Seminar Overview: The Human Genome Project came with high hopes, huge promises and considerable trepidation. The information yielded by this project has already begun to transform the theory and practice of medicine, narratives of human history, and individual and collective identity. There is considerable talk of the ethical dilemmas that have surfaced with the new technologies that have accompanied the genome science: should we offer genetic tests to persons for untreatable diseases? Should we inform family members about the results of genetics tests of individuals? What is the role of the 'right not to know'? How should we interpret the probabilistic nature of genetic information? Where is the boundary between property and human life, and what should be eligible for patenting? Are we our genes? These will be some of the issues we discuss in this class. The goal of this class is to stimulate critical reflection on the complex interrelationship between genetics and society. We will begin with the issues in reprogenetics and direct to consumer personal genome testing. There will be discussions on the topics of privacy and enhancement. The last session will provide an overview of the ethical issues in stem cell research and therapy. Some of the sessions will include presentations by guest speakers from Yale New Haven Hospital and Yale School of Medicine.

TRANSPLANTATION ETHICS
Seminar Leader: Alex Dubov, MDiv; PhD Candidate, Duquesne University
Seminar Overview: Organ transplantation is a complex modern medical invention posing some complex ethical questions. The ethical problems of organ transplantation result from the fact that it is a highly risky and, at the same time, highly beneficial procedure, involving questions of personhood, bodily integrity, attitudes towards the dead, and the social and symbolic value of human body parts. The moral debate around transplantation can be divided into three general topics: deciding when human beings are dead, deciding when it is ethical to procure organs, and deciding how to allocate organs once they are procured. These three topics will provide the framework for the class. We will talk about the ethics of current allocation policies, giving a special attention to the commercialization of organ donation. One session will address the religious and cultural issues in organ donation. The definition of death debate that is historically closely intertwined with transplantation will be the topic of another session. Since almost half of the donated kidneys come from living donors, we will discuss ethical issues in living donation. The last session will offer an overview of the ethical concerns regarding hand/face transplantation. Some of the sessions will include presentations by guest speakers from Yale New Haven Hospital and Yale School of Medicine.

PERSPECTIVES ON AGING
Seminar Leaders: Sally Edwards, MAT, MA, Chaplain, Monroe Village Continuing Care Retirement Community
Evie Lindemann, LMFT, ATR-BC, ATCS, Associate Professor/Clinical Coordinator, Master of Arts in Art Therapy Program, Albertus Magnus College
Seminar Overview: Perspectives on Aging is a seminar that will broaden the personal and professional perspectives with which we begin class.  Students in previous summers have returned home with increased compassion, curiosity and respect for aging people and the challenges they face. Students are expected to read deeply the poetry and brief essays assigned, and to participate in class discussions.  This is not a lecture course.  Because the richest wisdom is collective wisdom, students actually learn from each other, which is fun and enlightening because we come from diverse cultures, faiths and professions. Sally Edwards will lead the discussions in the first four classes.  Evie Lindeman will lead the fifth class at the Yale’s British Art Center with Linda Friedlaender (Curator of Education), making a bridge between the poetry and essays and visual art.   The final class, also led by Evie, will consist of brief student presentations, based on the assigned readings and class discussions, that facilitate the integration of personal and professional knowledge and experience.

BIOETHICS ACROSS RELIGIOUS TRADITIONS         
Seminar Leader: Kandace Geldmeier, PhD Candidate, Syracuse University; Syracuse University Humanities Center Dissertation Fellow
Seminar Overview: This seminar will cover the basic bioethical issues and how different religious traditions and people address them. Throughout the seminar, we will keep in mind that the status and value of the body and existence of a spirit or soul deeply affects how religious traditions and people will interpret biological, medical, and health care issues. Key topics will include “theological anthropology,” belief in an afterlife and its impact on decision-making, different religious values on compassion and suffering, and religious ideals of healing and ministry.

TOPICS IN ANIMAL AND VETERINARY ETHICS
Seminar Leader: Susan Kopp, DVM  - Scholar, Yale Interdisciplinary Center for Bioethics; Professor of Health Sciences, City University of New York -- LaGuardia Community College Veterinary Technology Program   
Seminar Overview: This seminar will introduce participants to several important areas of animal & veterinary ethics including ethical issues relating to animals in biomedical research and animal welfare assessment. Related topics in veterinary medicine such as euthanasia, the human animal bond, and veterinarian-client-patient relationships will also be briefly explored.  Introductory readings and class materials are designed for students in a variety of disciplines and prior background in animal related studies is not required.   Format is interactive.  Overviews of weekly topic areas, will be offered at the beginning of each class followed by discussions around readings and class material.  Open dialogue, questions, scenarios, and group discussions are essential elements of this seminar.

BIOETHICS AND THE LAW
Seminar Leader: Steve Latham, PhD, JD, Director, Yale Interdisciplinary Center for Bioethics
Seminar Overview: This seminar will examine the basic treatment by American law of some major issues in contemporary biomedical ethics. Readings will include standard legal materials such as cases and regulations, a number of quasi-legal sources such as government commission reports and institutional guidelines, and some academic articles. No familiarity with legal materials is assumed; indeed, this seminar is designed for students with no background in American law. For each of the topics listed below, the instructor will offer a very broad and necessarily cursory overview of the area, and then will focus seminar discussion on one or two sub-issues to be addressed in detail. While the focus will be American law, some comparative-law readings will be supplied in order to bring possible alternative approaches to light. Topics include the basics of the US legal system; abortion; end-of-life care and aid-in-dying; assisted reproduction; stem-cell research; organ donation; research on human subjects; and health care reform.

RESEARCH ETHICS
Seminar Leader: Steve Latham, PhD, JD, Director, Yale Interdisciplinary Center for Bioethics
Seminar Overview: This three-week seminar will examine the ethics of medical research involving vulnerable human populations, such as the poor, pregnant women, children, and prisoners and other populations, such as animals. Each session will focus on one group in particular. We will analyze these issues from both domestic and international perspectives. To this end, the course readings will include ethical policies from a variety of countries, in addition to pieces that explore the philosophical and moral issues surrounding this research. The seminar will utilize a “hyperprep” structure. I will split the seminar members into two groups, and, for each session, one of these two groups will be designated as the hyperprep group, meaning that those individuals have a “hyper-obligation” to prepare for the class. As a practical matter, this translates to the fact I will feel free to call on hyperprep group members to initiate discussion. The system will fail if group members only do the reading for half the sessions, or if seminar members feel intimidated for those days they are “on”.  Our tone will highly collegial and mutually supportive. 

BIOETHICS AND POPULAR CULTURE
Seminar Leaders: Monika Lau, M.Ed., CIP, Human Research Protection Program, Yale University
Jennifer Reese, M.S., CIP, Human Research Protection Program, Yale University
Seminar Objectives:

  • To identify and critically analyze classical medical ethical debates, and to assess their application in various contemporary popular culture & multimedia references.
  • To exhibit regular informed participation on the presented subject matter, readings, and viewings.
  • To demonstrate understanding of the material via discussions and a (possible) final paper.

END-OF-LIFE ISSUES
Seminar Leaders: Sally Edwards, MAT, MA, Chaplain, Monroe Village Continuing Care Retirement Community
Evie Lindemann, LMFT, ATR-BC, ATCS, Associate Professor/Clinical Coordinator, Master of Arts in Art Therapy Program, Albertus Magnus College
Carol Pollard, MA, MSc, Associate Director, Yale Interdisciplinary Center for Bioethics
Seminar Overview: This seminar series develops themes involved in each speaker's particular areas of interest.  Some of the presenters in this seminar will be giving morning lectures to all the students prior to giving more focused talks to seminar participants; therefore, some of the sessions will build upon these morning lectures.  Topics include: cultural dimensions of end-of-life issues; prognostication; what constitutes a "good death"; palliative sedation; so-called "death panels"; issues particular to infant deaths; grief; and religious issues at end-of-life.

CHILDREN’S ISSUES WITHIN BIOETHICS 
Seminar Leader: Evie Lindemann, LMFT, ATR-BC, ATCS, Associate Professor/Clinical Coordinator, Master of Arts in Art Therapy Program, Albertus Magnus College
Seminar Overview: We will use ethical principles as a lens through which we will explore issues related to children. This seminar series offers two unique approaches to learning: the first method involves our capacity to reflect upon meaning based experiential activities related to our interest in children and their well being.  The second method includes the use of thematically based visual imagery to reveal and expand upon our understandings of children and their lives.  This will allow participants an opportunity to integrate both cognitive and affective domains.  Two of the classes will be enhanced by guided discussions of relevant art work by Linda Friedlaender, Curator of Education, at the Yale Center for British Art (YBAC) on location. This approach - and the class content - may be particularly relevant for those who are interested in understanding more about children “from the inside out” and for those who have an active interest in roles that allow for direct intervention into children’s lives.

PUBLIC HEALTH ETHICS
Seminar Leader: Theofilos El Sayed Omar, MBChB, M.A. Medical Ethics and Law Candidate at Keele University School of Law
Seminar Overview:Public health policy is always the product of controversy. Scientific considerations blend with political and ethical conflicts in public health. Questions of autonomy, liberty, individual rights, power, coercion, justice, discrimination, stigma, community and the common good are central to public health policy and practice. This seminar series will examine the ethical implications of some of the major areas of public health practice and policy. Each session will open with a brief presentation from the facilitator followed by the introduction of ethical dilemmas through the use of case studies and then group discussion. The format will be interactive. Topics to be covered include: (1) analytical framework for public health ethics; (2) Values in Public Health; (3) Ethical Issues in Health Promotion and Disease Prevention; (4) Ethics and Infectious Disease Control; (5) Ethics of Mandatory Vaccination of children and health care workers, and (6) Ethics of Patient Responsibility and Resource Allocation. Regardless of your academic background, participating in the Public Health Ethics series, will enhance your capabilities of being able to demonstrate skills of ethical reasoning, analysis and decision-making. The aims of this course are (1) to acquaint students with the ethical aspects of public health and management of health services, as distinguished from the ethical aspects of the individual doctor-patient relationship; (2) to develop the ability of students to analyze ethical issues in support of public health policies, and (3) to critically and systematically apply ethical theories and principles to practical decision making issues in public health policy and practice.

INTERNATIONAL PERSPECTIVES ON BIOETHICS: ETHICAL AND LEGAL APPROACHES IN ASIA, EUROPE, AND THE US
Seminar Leaders: Cristina Pardini, JD, PhD Candidate in Law, University of Pisa, Italy
Antonia Reitter, JD, PhD Candidate, University of Bonn, Germany
Seminar Overview: The seminar focuses on exploring international bioethics and how different approaches and traditions around the globe lead to differing perceptions of bioethical problems. The concepts of autonomy, dignity, and paternalism in the various traditions will be at the heart of our explorations across the six sessions. Throughout the seminar, we will utilize various case studies to analyze how differing concepts of autonomy, dignity, and paternalism lead to distinct approaches in bioethical debates in Asia, Europe, and the US. The discussions will sensitize the students to controversial issues that differ not only between the continents but also within the regions themselves. Students will be encouraged to examine underlying ethical, legal, historical, and cultural grounds for these differences. This will result in confronting questions, such as: How do these differences have an impact on the bioethical and biolegal debates? What weight do these concepts carry in the different legal approaches to bioethical issues? The seminar is suitable for both international and American students who are eager to explore how their ethical compass might be influenced by their own traditions and are willing to broaden their horizons by learning what a different perspective could teach them.

ENVIRONMENTAL ETHICS
Seminar Leader: Matthew T. Riley, PhD Candidate, Drew University; Research Associate, The Forum on Religion and Ecology at Yale
Seminar Overview: What is the “environment” and who, or what, is worthy of moral consideration in environmental ethics? Elephants? Trees? Rocks? How is human health related to ecosystem health? What are alternative ways – both human-centered and biocentric – of thinking about and living in our environment? The purpose of this course is to provide an introduction to core questions and moral frameworks in environmental ethics and, simultaneously, to allow students to explore critical contemporary issues including but not limited to: the moral status of ecosystems; biodiversity loss; global climate change; the relationship between race, gender, poverty, and the environment; and intersections with other bioethics issues such as animal welfare, global health, and food. Group discussion, brief readings, case studies, and interactive breakout exercises will be part of this course. No prior experience in environmental ethics is required – participants will be encouraged to be exploratory, inquisitive, and interactive in their learning.

ETHICS IN THE EMERGENCY ROOM
Seminar Leader: Thomas E. Robey, MD, PhD; Chair, Waterbury Hospital Ethics Committee
Seminar Overview: The emergency department is a place where people are in times of their greatest medical need.  It is not surprising that emergency medicine physicians encounter ethical dilemmas, but it is rare to go a single 8 hour shift without facing a difficult non-medical choice.  Though rooted in the same principles of medical ethics, ethics in the ER has a different flavor to it.  Constraints of time, information, privacy and resources unique in an emergency setting alter the manner by which clinicians and ethicists should approach dilemmas.  This series aims to develop hands-on decision-making skills with discussion of common ethical challenges faced in the ER.  The short readings include relevant ethical or legal frameworks for each topic as well as a brief story or poem to set the tone for discussion.  Each seminar will consist of didactic learning for 20-30 minutes followed by more than an hour of case analysis and discussion.  The cases listed below each reading assignment refer to real cases encountered in the ER.  Copies of the cases will be handed out in class and small groups will solve them together.

SEXUAL ETHICS AND SOCIAL JUSTICE
Seminar Leader: Roberto Sirvent, PhD, JD, Associate Professor of Political and Social Ethics, Hope International University
Seminar Overview: Insofar as bioethics is concerned with the body’s relation to the whole person, it has an interest in dealing with questions of sexual ethics. This seminar will examine the relation between human sexuality and issues of social justice. Readings will include legal, philosophical, and theological materials so as to critically engage the sexual ethics literature from a variety of perspectives. Although common bioethical questions regarding abortion, contraception, reproductive technologies, and sex research are directly concerned with sexuality, this seminar invites students to examine less commonly known questions regarding the intersection of sexual ethics and social justice. Key topics include government regulation of sexual behavior, feminist ethics, sexual violence and human rights, and the neuroenhancement of love and marriage. Throughout the seminar, students will become well versed in the moral language of justice, self-determination, and human flourishing.

COMPARATIVE HUMAN RIGHTS AND HEALTHCARE
Seminar Instructors: Santa Slokenberga, LL.D candidate in Medical Law, Uppsala University, Faculty of Law, Sweden
Kavot Zillén, LL.D candidate in Medical Law, Uppsala University, Faculty of Law, Sweden
Seminar Overview: The seminar aims to provide an understanding of the international human rights protection framework in the healthcare settings, and to explore linkages between health, healthcare and human rights (both how human rights violations undermine health and how the protection and promotion of human rights can contribute to improved health status). It also aims to discuss the principles relevant to the health field, to reflect on the countries’ freedom in developing a legal framework, and policies for biomedicine related questions. The seminar begins with an introduction to international and regional human rights, identification of relevant documents at each of the levels, and a discussion on the right to health. Next, we will turn to topics on human rights application in health related practices (covering both the care and research), and analyze the issues legislators and policy makers have to take into account when the new laws and policy documents in the field are developed. During the course, a number of important issues related to human rights in health care will be examined, such as the right to health, consent to medical examination or treatment, reproductive rights and abortion, prohibition of discrimination, access to dying assistance.  The seminar has a comparative perspective on human rights in health care. It focuses on the international and regional human rights documents and their monitoring bodies; however, relevant examples of other countries are welcomed. For each of the seminars, students will be provided with seminar instructions, consisting of a scenario and questions, a list of case related readings, and a list of selected further readings for those wishing to broaden the scope of their knowledge. It is expected that students spend up to four academic hours to prepare for a seminar.
The course is of legal character. Students from different legal backgrounds interested in legal and policy aspects of human rights and health care are welcomed.

BIOETHICS AND THE MEDIA
Seminar Leader: Jeff Stryker, Freelance writer
Seminar Overview: Bioethics involves questions of good and evil, right and wrong, life and death.  Naturally, bioethical topics make for lively cocktail party conversations, exhaustive graduate studies and front-page, above-the-fold headlines. But do these headlines address the most important bioethical issues of the day?  We’ll look at what gets covered in bioethics and who covers it.  We will consider the role of journalists and journalism in the birth of bioethics as an academic discipline. We will sample and critique popular coverage of bioethics (from the New Yorker to People magazine), looking at the competing demands of storytelling, explanation and balance.  A half-dozen bioethics “perennials” will help focus these inquiries:  news coverage of suicide; organ transplantation and resource allocation; coverage of infertility treatment and “miracle births;” defining illness and marketing cures; and vaccination. A significant amount of class time will be reserved for discussion of student-written opinion pieces on wide-ranging bioethics topics. 

**Justin Oakley, PhD, Deputy Director, Centre for Human Bioethics, School of Philosophical, Historical and International Studies, Monash University, Australia

**DISCUSSION SESSIONS – No need to sign up!

Carol Pollard

Carol’s Discussion Session will meet on various Fridays throughout the eight weeks, 3 – 4:30 pm. Beginning classes will focus on different ways to view bioethical issues (principles approach, feminist ethics, virtue ethics, etc…and philosophy’s role in this process) through case studies.  Attendees will decide the topics for each meeting thereafter.  Student presentations will be encouraged. 

Elin Doval

Impact Ethics: Developing Self-determination Skills to Make a DIFFERENCE IN BIOETHICS
“Impact ethics is about using the tools of ethics to shock, press, crack, and chip society into a better place. It is about outcomes, and ordering the study of ethics around changing things for the better” (Françoise Baylis, 2014).  How we achieve the desired outcomes to impact ethics is the challenge. This discussion group seeks to explore the key role of self-determination skills (individual and/or group) in our lives’ journey. The meetings will be designed to assist the students in experiencing alternative ways of thinking through exploring individual and team self-determination skills development. The primary learning goal is to discover why self-determination is important for each person involved and working in the field of bioethics, and how developing self-determination skills can be an empowering tool that can help them find the wisdom they need to make choices that ultimately will affect the course of their lives and the lives of people they touch.

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Leader Bios

Laura Ballantyne-Brodie, BA, LLB (Hons) GradDip Legal Practice, Monash University, Attorney Baker & McKenzie LLP
Disasters, Law and Ethics
A graduate of the 2008 Summer Institute, Laura is an Associate at international law firm Baker & McKenzie where she practices as a climate change and environmental lawyer in Sydney.  Laura holds a Bachelor of Arts and Bachelor of Law with honors from Monash University.  From 2008 to 2011 Laura was a director of the World Energy Council of Australia and an intern and consultant  to UNESCO's Asian headquarters in Thailand.  Laura was invited to speak at the 2011 Looking Beyond Disaster youth forum in Christchurch New Zealand, a forum for youth who have survived a natural disaster. Since completing the summer institute at Yale, Laura has been interested in the intersection of public policy, ethics and law and returns to lead 'disasters, law and ethics' for the second year.   

Imre Bárd, MA, MSc, MPhil/PhD Candidate, Research Officer, London School of Economics and Political Science
The Ethics of Human Enhancement
Imre is a 2013 graduate of the Summer Bioethics Institute and he is currently a PhD candidate in Social Research Methods at the London School of Economics and Political Science (LSE).  Imre studied Philosophy and Cognitive Science at the University of Vienna, and Sociology at the LSE. His graduate work is embedded in the project ‘Neuro-enhancement – Responsible Research and Innovation,’ which involves several research centers throughout Europe and studies the social, legal and ethical aspects of neuro-enhancement technologies on behalf of the European Commission (www.nerri.eu).  Besides academia, Imre has a passion for music, contemporary dance and martial arts, and he is learning to tinker with robots and programming.

Shawna Benston, MA, MBE, JD
Narrative Medicine and Bioethics Mediation
Shawna Benston has a BA in English and Classics from Yale University, an MA in Classics from the University of St Andrews (Scotland), and a Masters of Bioethics and the Clinical Ethics Mediation Certificate from the University of Pennsylvania.  Her work has focused on mourning, melancholia, and metamorphosis in Classical literature and on narrative ethics, narrative medicine, and mediation in the realm of bioethics.  She is currently a JD candidate (May 2014) at the Benjamin N. Cardozo School of Law in New York City.  At Cardozo Law, Shawna has served as President of the Dispute Resolution Society, a member of the Mediation and Divorce Mediation Clinics, and a staff editor on the Journal of Conflict Resolution.  This past year, she served as Editor-in-Chief of the Journal of Conflict Resolution.  One of her duties as Editor-in-Chief was to plan and host the Journal’s annual Symposium, for which she chose the topic: “Bioethics, Healthcare Policy, and Alternative Dispute Resolution in the Age of Obamacare.”

Jack Brackney, Masters Candidate, Case Western Reserve University School of Medicine; Research Assistant, Center for Genetic Research, Ethics and Law, Case Western Reserve University School of Medicine
Obesity Issues and Bioethics
Jack received his BA from the University of Akron in Philosophy, Political Science, and Economics.  Currently he is involved in a research project exploring genomic medicine and medically underserved populations with a focus on issues of justice, access to health care and education, and influence on public health policy.  

Lori Bruce, MA, Assistant Director, Yale University’s Summer Institute in Bioethics; Chair, Community Bioethics Forum, Program for Biomedical Ethics, Yale School of Medicine, Vice-President, Community Voices in Medical Ethics
Neuroethics
Lori Bruce became Assistant Director of the Summer Institute in 2011.  Before Yale, Lori managed a social neurosciences laboratory at Harvard University, conducting research on the neural mechanisms relating those who are prodromal to psychotic disorders. Lori has consulted for a member of President Obama’s Commission on Bioethics, has presented research regarding the community’s role in bioethics to the American Society of Bioethics & Humanities, and has lectured at Boston University School of Medicine and guest-lectured at Harvard University. Lori has served on bioethics committees at Harvard (including the Cambridge Health Alliance and the innovative Community Ethics Committee) and has helped to author improved policy on a wide range of issues, including pediatric organ donation after cardiac death, palliative sedation, and doctor/patient social media communications. Lori is currently a member of Yale-New Haven Hospital’s Adult Ethics Committee. She also serves as Vice President of Community Voices in Medical Ethics (a nonprofit) and directs the Community Bioethics Forum at Yale Medical School’s Program for Biomedical Ethics: unique community outreach initiatives that enable members of the public to learn about – and advise on – pressing medical ethics issues. Lori co-teaches the Neuroethics seminar and greatly enjoys working with the students on their summer research initiatives.

Stephen M. Campbell, PhD, Assistant Professor of Philosophy and Environmental Studies & Andrew W. Mellon Post-Doctoral Fellow, Department of Philosophy and Religion, Coe College
An Introduction to Ethical Theory
Steve received his PhD in Philosophy from the University of Michigan in 2012.  He has broad interests in ethical theory, medical ethics, and environmental ethics and has published articles on the concept of well-being, the ethics of procreation, and the skepticism of David Hume.  His most recent work centers around the topic of well-being and the good life.  Steve is currently an Assistant Professor of Philosophy and Environmental Studies and an Andrew W. Mellon Post-Doctoral Fellow at Coe College in Cedar Rapids, Iowa.

Jiin-Yu Chen, PhD, Research Program Coordinator, Berman Institute of Bioethics, Johns Hopkins University
History and Bioethics of Medical Technologies
Jiin-Yu received her PhD in Medical Humanities from the Institute of Medical Humanities at the University of Texas Medical Branch in 2012.  She is interested in engaging scientists in discussions about the social and ethical features of their work -- particularly how the humanities, specifically literature and history, may help in contextualizing their work. Her dissertation focused on literary and historical material on scientists and looked at the importance of scientists’ character in shaping their practice of science.  Her most recent work examines science from a virtue ethics framework and studies the relevance of images of the scientist in literature to practicing scientists.  She is also broadly interested in history of medicine and literature that explores the practice of medicine.  She is the Research Program Coordinator for the Program on Ethics in Clinical Practice at the Berman Institute of Bioethics at the Johns Hopkins University, where she studies the ethical challenges residents face in their daily work.

Elin C. Doval, PhD, Assistant Professor, School of Business, Virginia State University; Assistant Director, Yale University’s Summer Institute in Bioethics
Disability and Bioethics
Discussion Session - Self-Determination
Elin is currently an Assistant Professor of Management, Organization, and Leadership for the Reginald F. Lewis College of Business at Virginia State University in Petersburg, Virginia. Elin received her Doctor of Philosophy degree in Special Education and Disability Policy from the School of Education at Virginia Commonwealth University (VCU), Richmond, Virginia. Her scholarly graduate research was honored with the Outstanding Dissertation Award of the Year. She also holds a Masters of Education from VCU. Her extensive background in the field of disability ethics and policy includes her experience as Research Coordinator for the Swank Employment Program and the Center for Disabilities Studies at the University of Delaware; Research Assistant and Behavior Specialist, Behavior Research Center at Virginia Commonwealth University; Principal Coordinator for Person Centered Customized Employment Federal Grant, from the Department of Labor, for the City of Richmond, VA; Senior Consultant and Behavior Specialist, Grafton, Richmond, VA; Senior Consultant, Virginia Autism Resource Center, Richmond, VA; and Educational Consultant for the Autism Program of Virginia, Richmond, VA and her Post -Doctoral Fellow at the  Department of Rehabilitation Counseling-School of Allied Health Professions at Virginia Commonwealth University. Elin’s service to the community and state organizations include consecutive appointment by four Virginia Governors to serve as a governmental advisor to The Virginia Board for People with Disabilities, including the Chair of Board position from 1997 to 2002, and to the Virginia Latino Advisory Board from 2002 to the present. Other memberships include Virginia Developmental Disability Medicaid Waiver Committee; Autism Advocacy Coalition of Virginia (State Developmental Disability Council); the Olmstead Committee of VA; Developmental Disability Waiver Task Force, Commonwealth of Virginia; Chairman of the Legislhative Committee for Family Support and Self-Determination, VA; member of the Mental Retardation Waiver Task Force, Commonwealth of Virginia; and Co-president of the Autism Society of America, Central Virginia Chapter. Her leadership and commitment to the protection, education, respect, and social justice for persons with disabilities has helped author and improve policy on a wide range of issues, including the Medicaid Waiver for Developmental Disabilities, the re-designing of the Intellectual Disabilities Waiver and the implementation of the Olmstead Decision in the state of Virginia. Elin’s unconditional commitment to bioethics stems from the profound love, and respect she has for her son, Robert, a young man with autism, and the many other individuals like him whose quality of life depends on society’s understanding and practice of bioethics.

Alex Dubov, MDiv; PhD Candidate, Duquesne University
Stem Cells, Genetics, and Enhancement
Transplantation Ethics
Alex is a PhD candidate in Healthcare Ethics at Duquesne University.  He has a strong interest in ethics of end-of-life decision-making and transplantation ethics.  His dissertation research focuses on the ethical dimensions of “nudging” in these two areas.  Nudging implies the use of interventions aimed to suggest one choice over another by gently steering individual decisions and enhancing directions yet without imposing any limit on available choices -  thus preserving autonomy. Prior to starting his PhD, Alex graduated with a Masters of Divinity from Andrews University and worked for Emory University Hospital first as a transplant chaplain and then later as a palliative care counselor. Recently Alex became a member of the Research Committee within the International Network of the UNESCO Chair in Bioethics.  He enjoys diversity and loves learning about different cultures and traditions.  He speaks six languages and has lived and studied in several countries.

Sally Edwards, MAT, MA, Chaplain, Monroe Village Continuing Care Retirement Community
End-of-Life Issues
Perspectives on Aging
Sally has served for 20 years as a chaplain in nursing homes, rehabilitation facilities, hospitals, and residential and home-care hospices.  While Pastoral Associate at Christ Episcopal Church, she served on the Robert Wood Johnson Institutional Review Board.   Now retired, Sally continues as a volunteer chaplain to advocate for palliative and hospice care for residents in a Continuing Care Retirement Community. For the Yale Summer Bioethics Institute she has participated in two End-of-Life Issues panels: “Mercy or Misery - The Impact of Communication on End of Life Care”, and Interfaith End of Life Issues.  She also teaches the Perspectives on Aging seminar.

Kandace Geldmeier, PhD Candidate, Syracuse University; Syracuse University Humanities Center Dissertation Fellow
Bioethics across Religious Traditions
Kandace is currently working on her dissertation, “Religiosity in Secular Spaces: Perinatal Bereavement Rituals in the Hospital.”   She was both a past student and instructor in the Bioethics Summer Institute and currently teaches courses at Syracuse University on a variety of traditions.  Kandace received a dual BA from Humboldt State University in Religious Studies and English Literature, an MA from Kent State University in Rhetoric and Composition, an MTS from Harvard Divinity School in World Religions, an MPhil from Syracuse University in Religion, and spent a fellowship year abroad studying Judaism at Hebrew University of Jerusalem.  Her research interests are multidisciplinary and include a variety of critical theories, bioethics, feminist and gender studies while remaining rooted in the study of religion.

Susan Kopp, DVM  - Scholar, Yale Interdisciplinary Center for Bioethics; Professor of Health Sciences, City University of New York -- LaGuardia Community College Veterinary Technology Program   
Topics in Animal & Veterinary Ethics   
A veterinarian and professor of health sciences in the veterinary technology program at LaGuardia Community College (CUNY), Susan is a Bioethics Center scholar and chairs the Center’s interdisciplinary scholars study group in animal ethics.  In 2010, while a visiting scholar at Yale, she developed and taught the first summer seminar in veterinary ethics and animal welfare.  Susan earned her doctor of veterinary medicine from Purdue University, bachelor of science in biochemistry from Virginia Tech, and completed course work in religious studies at the Instituto Internazionale Mystici Corporis, Loppiano, Italy.  She served as attending veterinarian for LaGuardia College’s Institutional Animal Care & Use Committee and is a past director of its veterinary technology program.  She teaches courses in veterinary technology, life science, and public health, and works on scholarly initiatives in areas tied to animal ethics.

Steve Latham, PhD, JD, Director, Yale Interdisciplinary Center for Bioethics
Bioethics & the Law
Research Ethics
Steve has been Director of the Bioethics Center since 2011 and was its Deputy Director from 2008.  A graduate of Harvard College, Harvard Law School, and the UC Berkeley doctoral program in Jurisprudence, he is a former healthcare business and regulatory attorney and served as Director of Ethics Standards at the American Medical Association before entering academics full-time.  He has been a graduate fellow at Harvard's Safra Center on Ethics and a research fellow at the University of Edinburgh's Institute for Advanced Studies in the Humanities.  He is a former member of Connecticut's Stem Cell Research Advisory Committee and presently on the board of the American Society for Bioethics & Humanities, which gave him its distinguished service award in 2010.  Steve's publications on health law and ethics have appeared in numerous medical and bioethics journals, law reviews and university-press books.  

Monika Lau, M.Ed., CIP, Human Research Protection Program, Yale University
Bioethics and Popular Culture
Monika completed her Master of Education in University of Lodz, Poland.  She spent the first few years in the States working in research on autism at the Yale Child Study Center.  That research experience stirred interest in the field of bioethics.  For the past five years, she has worked as the regulatory analyst in the Institutional Review Board (IRB) office at Yale reviewing proposal of biomedical and social, behavioral, and educational research studies. 

Evie Lindemann, LMFT, ATR-BC, ATCS, Associate Professor/Clinical Coordinator, Master of Arts in Art Therapy Program, Albertus Magnus College
Children’s Issues in BIoethics
End-of-Life issues
Perspectives on Aging
Evie Lindemann is a licensed Marriage and Family Therapist and a Board Certified Art Therapist. She has worked as a psychotherapist and as a researcher for a number of years.  Currently, she is an Associate
Professor in the Master of Arts in Art Therapy Program at Albertus Magnus College in New Haven, CT.  Additionally, she has consulted for the Veterans Administration in treating traumatized combat veterans using art therapy and other creative arts modalities.  Evie studies and practices yoga, and has been immersed in Eastern philosophy and movement based healing systems.  She teaches courses about the
experiences associated with death and dying, and end-of-life care.  She has been deeply influenced by the teachings of Meher Baba, a highly regarded Indian spiritual leader.  She has lived and worked in
Afghanistan, India, and Israel and is fascinated by the cultural lenses through which we see our worlds.  Evie is a printmaking artist who exhibits her work nationally and internationally and believes that the creative process is one of the most powerful means for finding inspiration, knowledge, and inner guidance.  This year is her fifth year of teaching in the Summer Bioethics Program.

Evie Marcolini, MD, FACEP, FAAEM, Assistant Professor, Yale School of Medicine
Neuroethics
Evie jointed Yale School of Medicine as an Assistant Professor of Emergency Medicine at Yale School of Medicine in 2010 and divides her time as faculty between emergency medicine, neurocritical care and surgical critical care.  She has recently become board-certified in neurocritical care, is a member of the ethics committee at Yale-New Haven Hospital, and is very interested in issues surrounding ethics and end-of-Life decision-making.  She is the Chair-Elect for the Critical Care Section of the American College of Emergency Medicine and is a co-editor on the recently published book: Emergency Department Resuscitation of the Critically Ill.  Evie has travelled to teach Emergency Medicine and Critical Care to programs in Egypt, Greece, Vietnam, and Argentina, as well as nationally for American College of Emergency Medicine and American Academy of Emergency Medicine. Outside of academics, Evie teaches Wilderness Medicine and enjoys rock and ice climbing, skiing and mountaineering.

Justin Oakley, PhD, Associate Professor and Deputy Director of the Monash University Centre for Human Bioethics, Australia
Ethics and Pharmaceuticals
Justin is the author of Morality and the Emotions (Routledge, 1993), and Virtue Ethics and Professional Roles (with Dean Cocking) (Cambridge University Press, 2001), and is editor of Informed Consent and Clinician Accountability: The ethics of report cards on surgeon performance (with Steve Clarke) (Cambridge University Press, 2007), and Bioethics (Ashgate, International Library of Essays in Public and Professional Ethics, 2009).  He has published articles in international journals on the ethics of clinical trials, informed consent, surrogate motherhood, surgeon report cards, whistleblowing, reproductive cloning, and various topics in ethical theory.  Justin is also co-editor of the quarterly refereed journal Monash Bioethics Review.  Justin teaches clinicians and other professionals in the Master of Bioethics course at Monash, along with an undergraduate philosophy subject on the moral psychology of evil.  He is currently working on a project on virtue ethics and medical conflicts of interest, and a project on the moral significance of genetic parenthood and the regulation of assisted reproduction.

Theofilos El Sayed Omar, MBChB, MA, Medical Ethics and Law Candidate at Keele University School of Law
Public Health Ethics
Theofilos (Theo) is a final year medical student intercalating in Medical Ethics and Law in the UK.  His dissertation research focuses on public health, end-of-life and medical ethics.  He has an avid interest in philosophy and Middle Eastern culture ethics, and is fluent in both Greek and Arabic.  Theo has taught clinical ethics classes at Keele University Medical School and lectures in bioethics seminars at Imperial College London.  In addition to academic medicine, Theo has had a long lasting involvement in medico-politics and humanitarian work.  He is currently the chair of conference and executive of the British Medical Association’s Medical School Committee, representing 40,000 UK medical students.  Theo is also a member of the Syrian-British Medical Society and has been working with Human Rights organisations, Amnesty International, and numerous world-wide charities, in order to provide medical aid and long-term care to refugees in the Middle East. Together, these collective experiences have influenced and broadened his perceptions of global, warfare and public health ethics.

Cristina Pardini, JD, PhD Candidate in Law, University of Pisa, Italy
International Perspectives on Bioethics: Ethical and Legal Approaches in Asia, Europe, and the US
Cristina is a doctoral student in law at the University of Pisa in Italy.  Her research focuses on the legal concept of capacity and its implications for end-of-life decision-making.  She has worked as teaching assistant and grader for the Bioethics and the Law class at the Law School in Pisa. She has recently published her research on the subject of genetic biobanks and preimplantation diagnosis.  Beyond academia, she has been collaborating with the Italian Organ Donors Association and was recently involved in a nation-wide interdisciplinary committee that drafted a law on advance directives submitted for consideration to the Italian Parliament.  As part of her research, she has collaborated with physicians, philosophers, legal scholars, and members of Italy’s National Commission on Bioethics.  Her interest in international legal practices on advance directives has led her to participate in numerous national conferences as well as the Intensive Clinical Bioethics Course at Harvard Medical School and the Yale Bioethics Summer Program; she has also worked as the resident Visiting Scholar at the Hastings Center for Bioethics.

Carol Pollard, MA, MSc, Associate Director, Yale Interdisciplinary Center for Bioethics
Discussion Section – Various Topics
End of Life Issues (Instructor and Coordinator)
Working on the formation of the Interdisciplinary Center for Bioethics, the Center made use of many of Carol’s past and present interests and then some. She worked in hospital administration for eleven years, where she became acquainted with ethical issues involving euthanasia, quality of life, abortion, doctor/patient relationships, and end-of-life decision-making. For ten years after that, she founded and directed an international human rights organization that dealt, for the most part, with issues involving prisoners that acquainted her with international ethical values concerning human life. The connection between these two areas—health/medical care and human rights—became very clear once she discovered the field of bioethics, and she has been happily ensconced in this area of study ever since.

Jennifer Reese, M.S., CIP, Human Research Protection Program, Yale University
Bioethics and Popular Culture
Jennifer graduated from Providence College with a Bachelor of Science in Biology/Secondary Education in 2007.  She went on to pursue a Master’s degree in Molecular and Cellular Biology from Quinnipiac University (2010).  For over five years, Jennifer has worked as regulatory analyst for the Yale University Biomedical Institutional Review Board (IRB), reviewing human subjects research protocols for ethical and scientific concerns.

Antonia Reitter, JD, PhD Candidate, University of Bonn, Germany
International Perspectives on Bioethics: Ethical and Legal Approaches in Asia, Europe, and the US
Antonia graduated with a JD from the University of Bonn School of Law in 2010, the Law and Neuroscience program at the University of Pavia, Italy, in 2012, and the Bioethics Summer Institute in 2013.  She is a PhD candidate in constitutional law at the University of Bonn where she has taught and worked as a graduate research assistant since 2011.  Her dissertation discusses the legal and ethical legitimacy of paternalistic regulations in biomedical law and focuses on transplantation law and research on human subjects.  Her other research interests are in social security law, reproductive ethics, and neuroethics.

Matthew T. Riley, PhD Candidate, Drew University; Research Associate, The Forum on Religion and Ecology at Yale
Environmental Ethics
Matt is a doctoral candidate at Drew University.  While writing his dissertation, he is engaged as a Research Associate at the Forum on Religion and Ecology at Yale and he serves as a Steering Committee Member for the Religion and Ecology Group at the American Academy of Religion.  In the past he has worked for the Green Seminary Initiative, he taught biology in the New York City public school system, and he designed the curricular materials for the Journey of the Universe project. He received a M.A.R. in religious ethics from Yale Divinity School, a M.S. in secondary science education from Pace University, and an M.Phil. in sociology from Drew University.  Broadly speaking, Matt approaches bioethics from an interdisciplinary standpoint, and he is interested in the intersection of environmental ethics, animal ethics, and religious perspectives on bioethics.  Matt’s dissertation research centers on the relationship between religious ideas and environmental values.

Thomas E. Robey, MD, PhD; Chair, Waterbury Hospital Ethics Committee
Ethics in the Emergency Room
Thomas is an emergency medicine physician who as chair of a community hospital’s ethics committee, oversees a clinical ethics consultation service.  He studied bioengineering and the history and philosophy of science at the University of Pittsburgh, earned his MD/PhD at the University of Washington and completed an emergency medicine residency at Yale.  His dissertation involved the optimization of human embryonic stem cell based treatments for cardiac repair.  Robey has designed and taught medical ethics courses to medical students and residents using principles- and casuistry-centered approaches to analyzing ethical dilemmas.  He has completed a Greenwall Foundation-funded project examining ethical issues surrounding radiation exposure from CT scans in the emergency department and continues to research ways to decrease dependence on CT scans in the emergency room.

Roberto Sirvent, PhD, JD, Associate Professor of Political and Social Ethics, Hope International University
Sexual Ethics and Social Justice
Roberto received an MA from Johns Hopkins University, a JD from the University of Maryland School of Law, and a PhD from the London School of Theology in the UK.  His dissertation presented a moral argument for an emotionally vulnerable God.  Roberto has broad interests in religion, morality, and political theory and has published essays on popular culture, philosophical hermeneutics, and the ethics of Reinhold Niebuhr.  His most recent work explores how various conceptions of love, sex, and marriage inform debates in bioethics.  In his teaching Roberto invites students to consider a more virtue-oriented approach to moral reasoning, as well as larger questions about what it means to be a citizen in a pluralistic world.  Outside of academics, he enjoys soccer, the movie theater, and playing hide-and-seek with his niece.

Santa Slokenberga, LL.D candidate in Medical law, Sweden, Uppsala University, Faculty of Law
Human Rights and Biomedicine
Santa is a third-year doctoral student in medical law at Uppsala University in Sweden.  She started her Doctor of Laws (LL.D) studies in September 2011.  Her dissertation focuses on regulatory questions pertaining direct-to-consumer genetic testing, with a particular emphasis on human rights protection in direct-to-consumer genetic testing practices.   Santa’s position at Uppsala University involves teaching in the field of EU law and health policy.  Further to that, since 2011, she has been lecturing at Riga Stradins University (Latvia) on several medical law related subjects (at both the undergraduate and graduate levels) and supervising individual student research projects.  Prior to starting doctoral studies, Santa worked as a legal advisor for Deloitte Latvia primarily focusing on health law related questions.

Jeff Stryker, Freelance writer
Bioethics in the Media
Jeff is a freelance writer based on the Connecticut shoreline.  He is a frequent contributor to The New York Times, where he has written about topics as diverse as vegansexuality, haunted houses and childhood innocence and as bioethical as organ transplantation and sperm banking.  His commentaries have appeared in The Nation, Salon and aired on National Public Radio.  He has been a researcher and writer at a variety of health policy foundations and think tanks, including the Kaiser Family Foundation, the Institute of Medicine, the Hastings Center and federal commissions on bioethics and HIV/AIDS.  His academic work has appeared in peer-reviewed journals in law and medicine, including the New England Journal of Medicine, the Journal of the American Medical Association and The Lancet.  He is at work on a book on what drives people to commit suicide.

Kavot Zillén, LL.D candidate in Medical law, Sweden, Uppsala University, Faculty of Law
Human Rights and Biomedicine
Kavot is a fourth-year doctoral student in medical law at Uppsala University in Sweden.  She started her Doctor of Laws (LL.D) studies in September 2010.  Her dissertation focuses on health care professionals’ freedom of religion and on their obligations to provide good health care. One of the questions that Kavot deals with in her doctoral studies is health care professionals’ right to conscientious objections in a lawful medical care.  Her position at the Faculty of Law involves research and teaching in the field of administrative and medical law.  Prior to starting her LL.D, Kavot worked as a legal expert at the Swedish Medical Responsibility Board and at The National Board of Health and Welfare, under the Ministry of Health and Social Affairs.

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2014 Participants

Saara Akhtar
Philosophy
King’s College London
London, UK

Aseel Alawadhi
Pharm D, PhD
LLM and PhD Candidate, Medical Law and Ethics
University of Birmingham, UK

Berta Artola Bardeci
Medical Student
Universidad Europea
Madrid, Spain

Maria Luiza Lombardi Beria
Juris Doctor Candidate
Ecola Superior do Ministerio Publico
Porto Alegre, RS, Brazil

Giulia Bonavina
Medical Student
Universidad Europea
Madrid, Spain

Hilary Bowman-Smart
Double Major: Bachelor of Arts & Bachelor of Sciences
Majors: Chemistry /Philosophy/Classical Studies
Minor: Molecular Biology
Diploma of Languages (German)
Monash University
Melbourne, Australia

Amanda R. Burkey
Bioethics
University of Rochester
Rochester NY

Yuliya Chykunova
Masters Candidate in Biotechnologies
Faculty of Biochemistry, Biophysics and Biotechnology
Jangiellonian University
Krakow, Poland

Deanna Cole
History and English
Indiana University
Bloomington IN

Francisco Timmers Colombo
Juris Doctor Candidate
Ecola Superior do Ministerio Publico
Porto Alegre, RS, Brazil

Rachael Cosgrove
Juris Doctor Candidate
University of South Carolina School of Law
Columbia SC

Marta Dabis
Chaplain Resident
Yale-New Haven Hospital
New Haven CT

Veena Deekonda
Respiratory Therapy
The Michener Institute
Toronto ON Canada
Bachelors of Science in Honours Biology
McMaster University
Hamilton Ontario Canada

Audrey Dellert
Administrative Intern
Environmental Engineering
Amity Regional High School
University of Connecticut
Storrs, CT

Ethan DeSon
Computer Science
University of California/San Diego
San Diego CA

Jonathan DeWeese
BS/MS Nursing
Adult/Gerontology Nurse Practitioner Track
MGH Institute of Health Professions
Boston MA
Patient Care Associate, Massachusetts General Hospital
The University of Chicago
South Asian Languages and Civilizations
Chicago, IL
Deep Springs College
Non-traditional curriculum
Deep Springs CA

Ana Beatriz Dias
Juris Doctor Candidate
Ecola Superior do Ministerio Publico
Porto Alegre, RS, Brazil

Lillian Elaine Duffee
Medical Student
University of South Alabama College of Medicine
Special Studies, Oxford University St. John’s College
Oxford UK

Christina Dineen
PhD Candidate in Political Theory
Tutor
Graduate School of Social and Political Science
University of Edinburgh
Edinburgh, Scotland, UK

Hannah Rosarie Doherty (aka Ros Gardner)
Philosophy, Maryvale Institute
Birmingham, UK
Managing Director, Ros Gardner Associates Ltd
Government Posts: Appointment, Human Genetics Commission; Liaison, Human Fertilisation and Embryology Authority
London, England (UK)

Katelyn Marie Edel
Majors: Neuroscience and Linguistics
Syracuse University
Syracuse NY

Alessandra Gai
Recent Graduate: University of Trento, Faculty of Law – Transnational Track
Trento, Italy

Phillip M. Galbo, Jr.
Biology
Niagara University
Niagara Falls NY

Juan Carlos Garcia-Morales
Medical Student
Universidad Europea
Madrid, Spain

John Edward “Jack” Gardner
Majors: Philosophy and Religion
Student Assistant of the Logic and Reasoning Department
James Madison University
Fairfax VA

Celalettin Gocken
Hacettepe University Faculty of Medicine
Department of Medical Ethics
Ankara, Turkey

Can Gu
Lecturer
Central South University
Xiangya School of Nursing
Changsha, Hunan Province
China

Alicia Gervas-Peeters
Medical Student
Universidad Europea
Madrid, Spain

Shahid Gul
Assistant Professor
Department of Philosophy
University of the Punjab, Lahore
Pakistan

Kunal Kumar Gupta
Biomedical Engineering and Pre-Med Honors Program
Peer Mentor, Chemistry Department
Ohio State University
Columbus OH

Selin Isguven
Biomedical Engineering
Yale University
New Haven, CT

Jack Kanouzi-Baschour
Medical Student
Universidad Europea
Madrid, Spain

Kimiko A. Kasama
Majors: Anthropology and Spanish
Minor: Chemistry
Transylvania University
Lexington KY

Yvette (Evie) Kendal
MA in Bioethics/PhD Candidate
Monash University
Melbourne, Australia

Adam Klimmek
Philosophy
Minor: Music
Boston College
Chestnut Hill MA

Minjung (MJ) Koo
Philosophy
Georgetown University
Washington DC

Natalie Lamy
Psychology
Minor: Ethics
Augustana College
Rock Island IL

Olivia Li
Honors, Specialist Program in Bioethics, Philosophy Department
Minor: History
University of Toronto – St. George
Toronto, Ontario
Canada

Lydia Gabriella Lissanu
Sociology
Minor: Biology
Transylvania University
Lexington KY

Benjamin H. Lyvers
Biology
Minors: Spanish and Philosophy
Transylvania University
Lexington KY

Helen MacGregor
Masters Candidate, Women’s Health/Adult Nurse Practitioner
Yale School of Nursing
Yale University
New Haven CT

Selena Marshall
Masters Candidate, Social Science Administration (Social Work)
Case Western Reserve University
Cleveland OH

Daniela Absara Martinez-Carrillo
Medical Student
Universidad Europea
Madrid, Spain

Kyle A. McGregor
PhD Candidate, Social Work
(Concentration: Research Methods/ Minor: Ethics)
Indiana University School of Social Work
Fellow, Section of Adolescent Medicine
Indiana University School of Medicine
Indianapolis IN

Linnea Michaels
Candidate, Master of Bioethics and Master of Social Work
University of Pennsylvania
Philadelphia PA

Jeffrey Miles
Philosophy and Pre-Med
Minors: Biology and Chemistry
Seattle Pacific University
Seattle WA

David Miller
Religion
Florida State University
Tallahassee FL

Daniel John Mills
Biology
Ohio State University
Columbus OH
Migrant Health Volunteer - Finger Lakes Community Health
Clinical Research Volunteer – Rochester General Hospital
Interventional Cardiology

Alma Vera Nemeth
Candidate, Masters Program in Ethics and Management
Strasbourg University
Strasbourg, France

Magdalena Noack
Medical Student
Philipps University
Marburg, Germany

Sumaya Mouen Noush
Juris Doctor Candidate
Loyola University Chicago School of Law
Chicago IL

Janaina Oliva Oishi, MD
Philosophy
University of Sao Paulo, Brazil
Staff Doctor, General Intensive Care
Hospital Sao Luiz Itaim
Sao Paulo, Brazil

Karmele Rosalia Olaciregui-Dague
Medical Student
Universidad Europea
Madrid, Spain

Jasmine Panton
History and Literature
Minor: Human Evolutionary Biology
Harvard University
Cambridge MA

Shifang (Bruce) Peng
Director, Health Management Center
Deputy Director, Hepatology and Infectious Disease Department
Xiangya Hospital, Central South University
Changsha, China

Courtney N. Petty
Juris Doctor Degree
Drake University Law School
Des Moines IA
MPH Degree
University of Texas Health Science Center
Houston TX

Paula Aurora Salcedo-Arroyo
Medical Student
Universidad Europea
Madrid, Spain

Natalie Salmanowitz
Neuroscience
Minor: Theater
Dartmouth College
Hanover NH

Hiroyuki Sato
PhD Candidate, Department of Biomedical Ethics, Graduate School of Medicine
University of Tokyo
Tokyo, Japan

Grant Douglas Schleifer
Majors: Biology and Religion
Emory University
Atlanta GA

Marie Eugenie Schnebelen
Medical Student and Candidate, Masters Program in Ethics
Strasbourg University
Strasbourg, France

Rocio Segovia-Moreno
Medical Student
Universidad Europea
Madrid, Spain

Alexandra (Sasha) Shapiro
Majors: Philosophy and Russian
Dickinson College
Student Writer, Dinkinson Magazine
Carlisle PA

Derek Michael King So
MSc Candidate, Human Genetics, Specializing in Bioethics
Research Assistant, Centre of Genomics and Policy (DGP)
McGill University
Montreal QC 
Canada

Kimberly Strickland
Biology
Minor: Spanish
Transylvania University
Lexington KY

Pascal Thibeault
Bachelor of Laws, LLB
Laval University
Quebec City, Quebec
Canada
Special Student, Harvard Law School
Cambridge, Massachusetts

Tara Phuongnhi Tran
Medical Anthropology and Chemistry and Pre-Medicine
Minors: Mathematics and Spanish
Case Western Reserve University
Cleveland OH

Helena Turner
Candidate, Masters of Science in Nursing, Family Nurse Practitioner
Yale School of Nursing
Yale University
New Haven CT

Nathaniel Gustav Warner
College of Social Sciences
Multidisciplinary Major: History, Government, Political and Social Theory, and Economics
Wesleyan University
Middletown, CT

Paola Yaacoub
Medical Student and Candidate, Masters Program in Ethics
Strasbourg University
Strasbourg, France

Sikai Yu
Administrative Intern
Bachelor of Commerce
Amity Regional High School
McGill University
Montreal, QC
Canada

 

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