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Yale Bioethics

Summer 2013

2013 Lectures
2013 Seminars
2013 Participants

2013 Lectures

Jonathan Borak
Clinical Professor of Epidemiology & Public Health
and Clinical Professor of Medicine, Yale School of Medicine          
The Ethics of Risk Assessment


R. Douglas Bruce
Assistant Professor of Medicine (AIDS), Yale School of Medicine
Ethical Dilemmas in Research Where Drug Users Are Concerned

Daniel Callahan
Senior Scholar and President Emeritus, The Hastings Center
Ethics and the Future of Medicine

Ananda Chakrabarty
Distinguished University professor, University of Calcutta, India; Distinguished University Professor, Department of Microbiology and Immunology, University of Illinois at Chicago, College of Medicine
Government policies, patents and court cases: Interfacing of law, medicine and bio-ethics

Thomas Duffy
Professor of Medicine; Director, Program for Humanities in Medicine, Yale School of Medicine
Reflections on Portraits of an Illness

Anne Fadiman
Yale University’s Francis Writer-in-Residence
The Spirit Catches You and You Fall Down: The Challenges of Crosscultural Medical Care

Roberta R. Friedman
Director of Public Policy, Rudd Center for Food Policy and Obesity
Yale University’s Rudd Center for Food Policy and Obesity: An overview

John Grim
Senior Lecturer and Research Scholar, Yale University;
Co-Coordinator, Forum on Religion & Ecology
Native American Religions: Toward an environmental ethic

Robert W. Gwadz
Assistant Chief, Laboratory of Malaria and Vector Research; Head; International Studies of Malaria and Entomology Section, NIAID, NIH, DHHS, National Institutes of Health
Malaria and Ethics: An oxymoron – dealing with neurosyphilis, DDT and Chimpanzees, and the perfidy of the European Union Towards Africa

John Hughes
Professor of Internal Medicine (General Medicine), Yale School of Medicine         
The Iron Triangle of American Health Care

Marcia Inhorn
William K. Lanham, Jr. Professor of Anthropology and International Affairs; Editor, Journal of Middle East Women’s Studies (JMEWS), Council on Middle East Studies, Yale University
Global Gametes: Reproductive “tourism” and Islamic bioethics in the high-tech Middle East

Shelly Kagan
Professor of Philosophy, Yale University
Applied Ethics and the Distinction between Killing and Letting Die

Dan Kahan

Elizabeth K. Dollard Professor of Law, Yale University
Science Literacy, Cultural Conflict, & Climate Change

Kaveh Khoshnood
Associate Professor, Yale School of Public Health
Ethical Issues in Student-led Short Term Global Health Research Projects

Susan Kopp
Professor of Health Sciences, Veterinary Technology Program, LaGuardia College, (City University of New York); Affiliated Scholar, Yale Interdisciplinary Center for Bioethics
Ethics, Animals, and the World We Share

Diane Krause
Professor of Laboratory Medicine, Pathology and Cell
Biology, Yale School of Medicine 
AND
Stephen Latham
Director, Yale Interdisciplinary Center for Bioethics        
Embryonic and Adult Stem Cells and Their Potential Clinical Use / Ethical Considerations

Stephen Latham
Director, Yale Interdisciplinary Center for Bioethics
Bioethics and the Law

Bandy Lee
Clinician (Psychiatry); Assistant Clinical Professor (Psychiatry), Yale School of Medicine; Co-Founder, Yale University’s Violence and Health Group (Law and Psychiatry Division)         
Violence, Its Causes, and Prevention

Robert J. Levine
Senior Scholar in Research Ethics and Past Co-Director, Yale Interdisciplinary Center for Bioethics; Professor of Internal Medicine, Lecturer in Pharmacology, Yale School of Medicine
Origins of the ethical norms and principles for research involving human subjects

Scott Long
Senior Physician, Connecticut Hospice; Associate Clinical Professor of Internal Medicine,
Yale School of Medicine
Evolution of Hospice in the United States as a Reflection of the Times

Ellen T. Matloff
Research Scientist, Department of Genetics, Yale School of Medicine;
Director, Cancer Genetic Counseling, Yale Cancer Center          
Direct-to-Consumer Genetic Testing: Helpful, Harmful or Pure Entertainment?

Maurice (Jeremiah) Mahoney
Professor of Genetics (Pediatrics); Professor of Obstetrics & Gynecology;
Executive Chair, Yale University Institutional Review Boards, Yale School of Medicine
Influencing ("Designing" "Choosing") Characteristics of Your Children When They Are Embryos or Fetuses

Mark Mercurio
Associate Professor of Pediatrics; Director, Pediatric Ethics Program, Yale School of Medicine; Director, Program for Biomedical Ethics, Yale School of Medicine          
Ethical Issues in Extreme Prematurity


Thomas Murray
Senior Research Scholar and President Emeritus, The Hastings Center;
Dwight H. Terry Visiting Scholar in Bioethics, Yale University 
T
BA

Timothy Nelson
Professor of Molecular, Cellular & Developmental Biology, Yale University          
Agricultural biotechnology: Potential for synergy between traditional and
biotech methods in agriculture and food production


Sherwin B. Nuland
Clinical Professor of Surgery Emeritus, Yale School of Medicine          
The Goodness of the Physician: From Hippocrates to high-tech

Pasquale Patrizio
Director, Yale Fertility Center, Yale School of Medicine    
Postponement and Preservation of Fertility: Ethical and social implications  

Aron Rose
Associate Clinical Professor, Department of Ophthalmology and Visual Sciences,
Yale School of Medicine; Associate Clinical Professor, Graduate Entry Pre-speciality in Nursing, Yale School of Nursing          
The Ethics Of Overseas Surgical Volunteerism

Frederick Simmons
Assistant Professor of Ethics, Yale Divinity School         
The Nature, Sources, and Moral Significance of Human Dignity


Bennett A. Shaywitz
Charles and Helen Schwab Professor in Dyslexia and Learning Development;
Co-Director, Center for Dyslexia and Creativity; Department of Neurology;
Section Chief, Department of Pediatrics, Yale School of Medicine
AND
Sally E. Shaywitz
The Audrey G. Ratner Professor in Learning Development, Yale University School of Medicine; Co-Director, Yale Center for Dyslexia and Creativity
Dyslexia and Creativity

John H. Warner
Chairman/Avalon Professor, History of Medicine, Yale School of Medicine; Professor, American Studies Program and Department of History, Yale University
Historical Perspectives on the Tuskegee Syphilis Study and Its Legacies

Wendell Wallach
Lecturer and Scholar, Yale Interdisciplinary Center for Bioethics
From Robots to Techno Sapiens:
Ethics, law and public policy in the development of robots and neurotechnologies

Robert Wyman
Professor of Biology; Program Director for the Howard Hughes Medical Institute Undergraduate Science Education Program, Yale University         
How Societies Control Population

Howard Zonana
Professor of Psychiatry, Yale School of Medicine;
Clinical Professor (Adjunct) Law, Yale Law School
Use of Forced Medication on Defendants and in Psychiatric Facilities

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2013 Seminars

Research Ethics
This three-week seminar will examine the ethics of medical research involving vulnerable human populations, such as the poor, pregnant women, children, and prisoners and other populations, such as animals. Each session will focus on one group in particular. We will analyze these issues from both domestic and international perspectives. To this end, the course readings will include ethical policies from a variety of countries, in addition to pieces that explore the philosophical and moral issues surrounding this research.  The seminar will utilize a “hyperprep” structure. I will split the seminar members into two groups, and, for each session, one of these two groups will be designated as the hyperprep group, meaning that those individuals have a “hyper-obligation” to prepare for the class. As a practical matter, this translates to the fact I will feel free to call on hyperprep group members to initiate discussion. The system will fail if group members only do the reading for half the sessions, or if seminar members feel intimidated for those days they are “on”.  Our tone will highly collegial and mutually supportive. 

Steve Latham, PhD, JD, Director, Yale Interdisciplinary Center for Bioethics. Steve has been Director of the Bioethics Center since 2011 and was its Deputy Director from 2008.  A graduate of Harvard College, Harvard Law School, and the UC Berkeley doctoral program in Jurisprudence, he is a former healthcare business and regulatory attorney and served as Director of Ethics Standards at the American Medical Association before entering academics full-time.  He has been a graduate fellow at Harvard's Safra Center on Ethics and a research fellow at the University of Edinburgh's Institute for Advanced Studies in the Humanities.  He is a former member of Connecticut's Stem Cell Research Advisory Committee, and of the board of the American Society for Bioethics & Humanities, which gave him its distinguished service award in 2010. Steve's publications on health law and ethics have appeared in numerous medical and bioethics journals, law reviews and university-press books.  

 

Living with Disability
Series Description:  This seminar series will strive to impart an awareness of the perspective and experience of persons living with disability contrasted with current bioethical stances.  We will employ basic ethical principles to examine societal responses to people living with disabilities.  Through the use of select readings, video and personal accounts, students will examine social structures and personal experience of disability in law, government, clinical settings, community and intimate relationships. Students who attend this seminar series will:  Recognize variations in perspectives of persons with disabilities and current bioethical dialogue; Be aware of philosophical frameworks employed in bioethical considerations on disability; Include disability perspective in decision-making processes affecting persons with disability.

Moira O’Neill, PhD, Assistant Professor, Husson University School of Nursing, Bangor Maine.  A 2008 graduate of the Summer Program, Moira returns for a fourth year as seminar faculty. She received her PhD from Yale School of Nursing in 2011 with a dissertation that explored the existence and purpose of state children’s ombudsmen. Having served as an Assistant Child Advocate with the Connecticut Office of the Child Advocate for 11 years, much of her career focused on policy affecting children and people with disabilities.  At Husson Moira is teaching Policy & Leadership and developing an interdisciplinary bioethics program. Moira has enjoyed introducing Yale Summer bioethics students to unique perspectives of children and people with disabilities. Her seminars are designed to bring students face to face with the lived experiences of these dynamic communities in order to better inform bioethical decision-making.   She lives on the coast of Maine appreciating the world’s best hiking and kayaking.

 

Stem Cells, Genetics, and Enhancement
The Human Genome Project came with high hopes, huge promises and considerable trepidation. The information yielded by this project has already begun to transform the theory and practice of medicine, narratives of human history, and individual and collective identity. There is considerable talk of the ethical dilemmas that have surfaced with the new technologies that have accompanied the genome science: should we offer genetic tests to persons for untreatable diseases? Should we inform family members about the results of genetics tests of individuals? What is the role of the 'right not to know'? How should we interpret the probabilistic nature of genetic information? Where is the boundary between property and human life, and what should be eligible for patenting? Are we our genes? These will be some of the issues we discuss in this class. The goal of this class is to stimulate critical reflection on the complex interrelationship between genetics and society. We will begin with the issues in reprogenetics and direct to consumer personal genome testing. There will be discussions on the topics of privacy and enhancement. The last session will provide an overview of the ethical issues in stem cell research and therapy. Some of the sessions will include presentations by guest speakers from Yale New Haven Hospital and Yale School of Medicine.

Alex Dubov, MDiv; PhD Candidate, Duquesne University. Alex is a PhD candidate in Healthcare Ethics at Duquesne University.  He has a strong interest in ethics of end-of-life decision-making and transplantation ethics. His dissertation research focuses on the ethical dimensions of “nudging” in these two areas. Nudging implies the use of interventions aimed to suggest one choice over another by gently steering individual decisions and enhancing directions yet without imposing any limit on available choices -  thus preserving autonomy. Prior to starting his PhD, Alex graduated with a Masters of Divinity from Andrews University and worked for Emory University Hospital first as a transplant chaplain and then later as a palliative care counselor. Recently Alex became a member of the Research Committee within the International Network of the UNESCO Chair in Bioethics. He enjoys diversity and loves learning about different cultures and traditions. He speaks six languages and have lived and studied in several countries.

 

Contemporary Ethical Problems in Biotechnology and Bio-Medical Sciences 
In modern biotechnology and bio-medical sciences we face ethical problems that often did not exist a few years ago because the “reference technology” did not yet exist.   Apparently specific problems, e.g. patenting new life forms, seems to make it necessary to form a “new ethics,” and so traditional moral principles may not apply to ethical aspects of modern science.  Do we really need new ethics?  And what can be said about ethics if it had an expiry date? Examples from contemporary biotechnology, such as genetically modified organisms (GMO), human embryonic stem cells, and gene therapy shall be discussed and possible solutions developed. The goals of this seminar are for the student to acquire information about: the progression of biomedical sciences; contemporary bio-ethics; fundamental terms; concepts and ideas of ethics; different ethics models in history through the present time.

Greg Becker, MA, PhD.; Head of the Group for Bioethics in Life Sciences, Jagiellonian University, Cracow, Poland. Greg received his PhD in Philosophy from the Ruhr-University Bochum, Germany. His interest in bioethics stems from the following: (1) before his PhD work, he spent ten years as a male nurse and later as a consultant in a violence-free community-oriented psychiatric clinic.  “In that hospital I learned more about anthropology, epistemology and ethics than in books.” (2) pursuing the question of how bioethics can be designed to develop an impact on the day-to-day work in the health care setting.  In 2007 Greg founded the Group for Bioethics in Life Sciences and developed the “Cracow Model of Integrated Bio-Ethics” that focuses on the integration of bioethics as a sub-discipline of the life sciences. The leitmotif of his work is the moral responsibility of researchers and medical staff in  the life sciences and medicine in Europe, where bioethics is still evaluated only as a theoretical discipline of philosophy and theology. Greg´s model is based on the idea that bioethics is “management of ethical problems in life sciences” by organization of analyses, conclusions and respective actions of ethical problems.

 

Introduction to the Ethical Aspects of the “Star Trek” Saga
For over four decades the Star Trek Saga has become a kind of moral institution by showing a positive image about man's future based on the highest values.  Star Trek ethics has become a synonym for what man can attain based on morality: a utopian society of justice and (almost) eternal peace.  The authors of Star Trek, with its inventor Gene Roddenberry leading the way, have built a fictional perfect human society established on “perfect” ethics.  What exactly is Star Trek ethics?  What is the actual connection between bioethics and the Star Trek Saga?  Can the Star Trek saga be an example of organizing ethics in such a way that it creates that perfect society?  How are different aspects of ethics connected to each other? A working hypothesis: Star Trek Ethics will show how ethics generally is organized, how it comes from values to moral rules, and that ethics must be homogenous in all aspects to have the best impact! The goals of this seminar are to give the student: Advanced knowledge on basics and history of Star Trek; Advanced knowledge on fundamental terms, -concepts and –ideas of Star Trek; Advanced knowledge on different ethics models in Star Trek; Advanced knowledge of ethics structures in Star Trek.

Greg Becker (see above)

 

Bioethics Across Religious Traditions
This seminar will cover the basic bioethical issues and how different religious traditions and people address them. Throughout the seminar, we will keep in mind that the status and value of the body and existence of a spirit or soul deeply affects how religious traditions and people will interpret biological, medical, and health care issues. Key topics will include “theological anthropology,” belief in an afterlife and its impact on decision-making, different religious values on compassion and suffering, and religious ideals of healing and ministry.

Craig A. Ford, Jr., PhD Candidate, Boston College. Craig A. Ford, Jr., is currently a first-year doctoral student in theological ethics at Boston College. He researches topics at the intersection of moral theology, epistemology, and ecclesiology, and he is currently interested in the formation of the conscience in Christian communities. Craig’s scholarship is particularly attentive to the integration of insights from critical theory in addition to insights from studies of race, sex, gender, sexual orientation, and socioeconomic class into a moral theology that constructively engages canonically important figures in the Christian (specifically Catholic) theological past. As a moral theologian, he hopes one day to help students wrestle with questions that they confront in their lives as practitioners of a living faith in a world that, through the differences that we are learning to celebrate as a society, continually gives us insight into building the global community in which we dare to give to all persons the opportunity to live ‘the good life.’ Craig holds a Bachelor’s degree from the University of Notre Dame and a Master of Arts in Religion degree from Yale Divinity School.

 

Bioethics and the Law
This seminar will examine the basic treatment by American law of some major issues in contemporary biomedical ethics. Readings will include standard legal materials such as cases and regulations, a number of quasi-legal sources such as government commission reports and institutional guidelines, and some academic articles. No familiarity with legal materials is assumed; indeed, this seminar is designed for students with no background in American law. For each of the topics listed below, the instructor will offer a very broad and necessarily cursory overview of the area, and then will focus seminar discussion on one or two sub-issues to be addressed in detail. While the focus will be American law, some comparative-law readings will be supplied in order to bring possible alternative approaches to light. Topics include the basics of the US legal system; abortion; end-of-life care and aid-in-dying; assisted reproduction; stem-cell research; organ donation; research on human subjects; and health care reform.

Steve Latham (see Research Ethics)

 

Bioethical Issues and the Rights of Children
The concept of childhood has evolved in the context of public policy as much as in culture, religion and other paradigms.  In the framework of human rights there have been tensions between those of children, parents (biological and otherwise) and the state.  This seminar series will consider the child’s perspective in decision-making processes that endeavor to promote respect for person, justice and beneficence while accommodating growth and development. We will discuss ethical dilemmas that develop in the mix of children’s social status, public systems they encounter, and issues that impact their lives.  Students who participate in this seminar series will:  Recognize the developmental stage of childhood in the context of public policy and relationships with other groups and social systems;  Use the principles of bioethics to argue for balancing the rights of children, parents and the state.

Moira O’Neill (see Living with Disability)

 

Public Health Ethics
This seminar series will examine the ethical implications of some of the major areas of public health practice and policy. The format will be interactive. Each session will open with a brief presentation by one of the students of the group reading the assignment for that session followed by comments from the facilitators and open discussion. Topics to be covered include: analytical framework for public health ethics, ethical aspects of preparedness planning for public health emergencies, the genome and public health, mandatory vaccination of children and health care workers, environment and public health ethics, public health and socioeconomic health disparities.      

Chalmers C. Clark, PhD, Department of Philosophy, Union College (Schenectady, NY);  School of Management, Union Graduate College; Neiswanger Bioethics Institute, Stritch School of Medicine, Loyola University (Chicago). Chalmers’s background is in naturalized epistemology and biomedical ethics. He received his PhD from the Graduate Center of the City University of New York (CUNY). Chalmers has been Visiting Scholar at the Institute for Ethics of the American Medical Association; Donaghue Visiting Scholar in Biomedical and Behavioral Research Ethics, Yale University; and Visiting Fellow at the Center for Philosophy and History of Science at Boston University. He has also served as Ethics Consultant and Ethics Columnist for the NYS AFL-CIO. Chalmers’s principal focus is to extend naturalized holism into the domain of moral and political thought. The result has been research and publication in several interdisciplinary forms. Current work centers on trust relations in the medical profession, the professions as stewards of public trusts, and the role public trusts play in the basic structure of a free society.

    

Empathy and the Practice of Medicine
We will examine medical ethics policies, landmark clinical trials, and specific patient cases through the lens of empathy.   This seminar series will include facts-based discussions about the topics and the bioethical issues involved – as well as experiential tasks to facilitate integration of both the cognitive and emotional domains related to empathy.  Our discussions will be enhanced by a visit to the renowned Cushing Library at the Yale School of Medicine; all other sessions will be held at the Yale University Art Gallery since those seminars will be enhanced by guided discussions of relevant pieces of art from the Collection.  This approach - and the class content - may be particularly relevant for those who are interested in practitioner roles (including medicine, nursing, social work, and chaplaincy).  We will explore many questions, including the following: When might absent empathetic responses lead to indifferent healthcare policy – and cause harm against the disenfranchised? When empathy may be dampened, what are safeguards that can be put in place to protect research subjects and patients? How can empathy facilitate healing from trauma? How might an empathic response dissolve a patient’s desire to sue their physician?  How can this powerful emotion help to connect practitioners and patients in healthy ways?    

Lori Bruce, MA, Assistant Director, Summer Institute, Interdisciplinary Center for Bioethics, Yale University; Chair, Community Bioethics Forum, Program for Biomedical Ethics, Yale School of Medicine; Vice-President, Community Voices in Medical Ethics. Lori Bruce became Assistant Director of the Summer Institute in 2011.  Before Yale, Lori managed a social neurosciences laboratory at Harvard University, conducting research on the neural mechanisms relating those who are prodromal to psychotic disorders. Lori has consulted for a member of President Obama’s Commission on Bioethics, has presented research regarding the community’s role in bioethics to the American Society of Bioethics & Humanities, and has lectured at Boston University School of Medicine and guest-lectured at Harvard University. Lori has served on bioethics committees at Harvard (including the Cambridge Health Alliance and the innovative Community Ethics Committee) and has helped to author improved policy on a wide range of issues, including pediatric organ donation after cardiac death, palliative sedation, and doctor/patient social media communications.  Lori is currently a member of Yale-New Haven Hospital’s Adult Ethics Committee. She also serves as Vice President of Community Voices in Medical Ethics (a nonprofit) and directs the Community Bioethics Forum at Yale Medical School’s Program for Biomedical Ethics: unique community outreach initiatives that enable members of the public to learn about – and advise on – pressing medical ethics issues.

Evie Lindemann, MAAT, MA, Assistant Professor, Albertus Magnus College.  Evie is a licensed Marriage and Family Therapist and a Board Certified Art Therapist and  has worked as a psychotherapist and as a researcher for a number of years.  Currently, she is an Assistant Professor in the Master of Arts in Art Therapy Program at Albertus Magnus College in New Haven, CT.  Additionally, she consults for the Veterans Administration in treating traumatized combat veterans using art therapy and other creative arts modalities.  Evie studies and practices yoga, and has been immersed in Eastern philosophy, and movement based healing systems.  She teaches courses about the experiences associated with death and dying, and end of life care.  She has been deeply influenced by the teachings of Meher Baba, a highly regarded Indian spiritual leader.  She has lived and worked in Afghanistan, India, and Israel, and is fascinated by the cultural lenses through which we see our worlds.  Evie is a printmaking artist who exhibits her work nationally and internationally, and believes that the creative process is one of the most powerful means for finding inspiration, knowledge, and inner guidance.

David Odo, D. Phil., Bradley Assistant Curator of Academic Affairs, Yale University Art Gallery. David is the Bradley Assistant Curator of Academic Affairs, works with Yale faculty and students to use the collections of the Yale University Art Gallery in teaching, and teaches on museum-related subjects. He received his doctorate from the University of Oxford in Social and Cultural Anthropology with a specialization in early Japanese photography. He has held fellowships at the University of Tokyo, the Smithsonian’s Freer and Sackler Galleries in Washington, DC, the Rijksmuseum Amsterdam, and Harvard University. He has published and lectured widely on early Asian photography. Prior to his current position at the Gallery, he taught in the anthropology department at Harvard University, where he also curated an exhibition on the collection of Japanese photographs at Harvard’s Peabody Museum of Archaeology and Ethnology.

 

Neuroethics
This seminar will examine ethical and social issues raised by developments in the neurosciences. Topics will include brain imaging, issues of privacy and stigmatization; cognitive remediation training programs; neuroscience in the courtroom; and pressing developments in pediatric psychiatry and adult neurology.  Guest speakers from Yale School of Medicine will present case studies of pressing issues within these subject areas.

Evie Marcolini, MD, FACEP, FAAEM, Assistant Professor, Yale School of Medicine. Evie jointed Yale School of Medicine as an Assistant Professor of Emergency Medicine at Yale School of Medicine in 2010 and divides her time as faculty between emergency medicine, neurocritical care and surgical critical care.  She has recently become board-certified in neurocritical care, is a member of the ethics committee at Yale-New Haven Hospital, and is very interested in issues surrounding ethics and end-of-Life decision-making.  She is the Chair-Elect for the Critical Care Section of the American College of Emergency Medicine and is a co-editor on the recently published book: Emergency Department Resuscitation of the Critically Ill. Evie has travelled to teach Emergency Medicine and Critical Care to programs in Egypt, Greece, Vietnam, and Argentina, as well as nationally for American College of Emergency Medicine and American Academy of Emergency Medicine. Outside of academics, Evie teaches Wilderness Medicine and enjoys rock and ice climbing, skiing and mountaineering.

Lori Bruce (see above)

 

Ethical Issues in Organ Transplantation and Allocation
Organ transplantation is a complex modern medical invention posing some complex ethical questions. The ethical problems of organ transplantation result from the fact that it is a highly risky and, at the same time, highly beneficial procedure, involving questions of personhood, bodily integrity, attitudes towards the dead, and the social and symbolic value of human body parts. The moral debate around transplantation can be divided into three general topics: deciding when human beings are dead, deciding when it is ethical to procure organs, and deciding how to allocate organs once they are procured. These three topics will provide the framework for the class. We will talk about the ethics of current allocation policies, giving a special attention to the commercialization of organ donation. One session will address the religious and cultural issues in organ donation. The definition of death debate that is historically closely intertwined with transplantation will be the topic of another session. Since almost half of the donated kidneys come from living donors, we will discuss ethical issues in living donation. The last session will offer an overview of the ethical concerns regarding hand/face transplantation. Some of the sessions will include presentations by guest speakers from Yale New Haven Hospital and Yale School of Medicine.

Alex Dubov (see Stem Cells...)

 

A Philosophical Introduction to Ethical Theory
Our lives are full of choices to be made, ranging from trivial day-to-day choices to profound, life-shaping ones. How should we choose? More broadly, how should we live? And why should we live that way? The goal of ethical theory is to arrive at an answer to these daunting but pressing questions. This seminar is a “crash course” to ethical theory. In our six sessions, we will examine and discuss the structure of ethical theories, key concepts in ethics, historically influential ethical theories (including egoism, utilitarianism, Kantianism, and virtue ethics), different methodological approaches to ethics, and various views about human well-being. In each session, there will be time devoted to engaging in ethical argument and theorizing ourselves. In other words, we will do philosophy, and not merely learn about it. Modest supplementary readings will be assigned. No prior experience with philosophy or ethics is required.

Stephen M. Campbell, PhD, Assistant Professor of Philosophy and Environmental Studies & Andrew W. Mellon Post-Doctoral Fellow,
Department of Philosophy and Religion, Coe College.  Steve received his PhD in Philosophy from the University of Michigan in 2012. He has broad interests in ethical theory, medical ethics, and environmental ethics and has published articles on the concept of well-being, the ethics of procreation, and the skepticism of David Hume. His most recent work centers around the topic of well-being and the good life. Steve is currently an Assistant Professor of Philosophy and Environmental Studies and an Andrew W. Mellon Post-Doctoral Fellow at Coe College in Cedar Rapids, Iowa.

 

Environmental Ethics
What is the “environment” and who, or what, is worthy of moral consideration in environmental ethics? Elephants? Trees? Rocks? How is human health related to ecosystem health? What are alternative ways – both human-centered and biocentric – of thinking about and living in our environment? The purpose of this course is to provide an introduction to core questions and moral frameworks in environmental ethics and, simultaneously, to allow students to explore critical contemporary issues including but not limited to: the moral status of ecosystems; biodiversity loss; global climate change; the relationship between race, gender, poverty, and the environment; and intersections with other bioethics issues such as animal welfare, global health, and food. Group discussion, brief readings, case studies, and interactive breakout exercises will be part of this course. No prior experience in environmental ethics is required – participants will be encouraged to be exploratory, inquisitive, and interactive in their learning.

Matthew T. Riley, Ph.D. Candidate, Drew University; Research Associate, The Forum on Religion and Ecology at Yale. Matt is a doctoral candidate at Drew University. While writing his dissertation, he is engaged as a Research Associate at the Forum on Religion and Ecology at Yale and he serves as a Steering Committee Member for the Religion and Ecology Group at the American Academy of Religion. In the past he has worked for the Green Seminary Initiative, he taught biology in the New York City public school system, and he designed the curricular materials for the Journey of the Universe project. He received a M.A.R. in religious ethics from Yale Divinity School, a M.S. in secondary science education from Pace University, and an M.Phil. in sociology from Drew University. Broadly speaking, Matt approaches bioethics from an interdisciplinary standpoint and he is interested in the intersection of environmental ethics, animal ethics, and religious perspectives on bioethics. Matt’s dissertation research centers on the relationship between religious ideas and environmental values.

 

Medical Ethical Debates in Popular Culture
This course seeks to evaluate medical ethical issues from the perspective of modern popular culture. Many of the topics covered in other seminars this summer (including, but not limited to, general ethical principles, ethics in law, rights-based ethics, ethics at the end of life, research ethics, and ethics in film and literature) will be discussed in this class, but with the particular lens of their treatment within a pop culture reference.  This seminar is intended to be interactive: while students will be asked to read various selections from literature and academia in advance of the class, the ultimate purpose of the readings will be to provide a background from which to begin class discussion. To this end, selections from contemporary films and television programs will be shown in class in order to further stimulate the interactive exchange. The diversity of student backgrounds (including academic discipline) should prove useful as we consider the various intuitions expressed in class. No prior medical ethical or philosophical background is required—just a general desire to read, watch, and discuss!

Adam Schechter, PhD, Coordinator for Systems, Compliance, and Education in the Human Research Protection Program at Yale. Adam is the coordinator for education, compliance, and systems in the Human Research Protection Program at Yale. Having done his doctorate work in philosophy and biomedical ethics at Syracuse University, Adam also spent several years working as a clinical ethics associate at St. Joseph’s Hospital Health Center in Syracuse. His responsibilities included ethics education, consultation, and mediation. Adam enjoys movies and books (hence this class), watching sports, spending time with his wife and one-year-old son, and long walks on the beach.

 

Self-Determination
What does self-determination have to do with ethics anyway? This course seeks to explore the key role of self-determination skills (individual and/or group) in our lives’ journey. The seminar is divided in six units and is designed to assist the students in experiencing alternative ways of thinking through exploring individual and team self-determination skills development.  Creativity and thought provoking exercises will be some of the learning tools used during the class. The primary learning goal of this course is to discover why self-determination is important for each person involved and working in the field of bioethics, and how developing self-determination skills can be an empowering tool that can help them find the wisdom they need to make choices that ultimately will affect the course of their lives and the lives of people they touch.

Elin C. Doval, PhD, Assistant Professor, School of Business, Virginia State University. Elin is a Professor at the Reginald F. Lewis School of Business at Virginia State University in Petersburg, Virginia. Her educational philosophy is grounded in a student-centered approach, and her research interests focus on self-determination and empowerment. Elin received her PhD degree in Special Education and Disability Policy in 2008 from the School of Education at Virginia Commonwealth University (VCU), Richmond, Virginia. She holds a Masters of Education from VCU and a mediation certification from the Center for Mediation Key Bridge Foundation, Washington, D.C.  Elin’s career agenda is to merge the worlds of business and education towards a common goal of global sustainability. The purpose for such agenda is to foster prosperous economic growth through social responsibility.

 

Narrative Medicine
This seminar will explore the relationships among narrative medicine, narrative ethics, and mediation—three seemingly separate disciplines that, in fact, overlap significantly.  A unifying thread, as we shall see, will be the telling and receiving of narrative: how to relate one’s story and how to hear others’.  This seminar will incorporate both a theoretical aspect, involving close reading of fictional and non-fictional pieces, and a practical aspect, involving the study of mediation techniques and skills.  The course will culminate in a mediation simulation, in which students will enact a clinical scenario based on a real-life case, with several students taking turns serving as mediator.  The goal of this exercise is to fuse the previous class sessions’ discussions of narratology, reception, and expression, and how each element emerges in the medical setting.

Shawna Benston, M.A., M.B.E.; JD Candidate at the Benjamin N. Cardozo School of Law.  Shawna has a BA in English and Classics from Yale University, an MA in Classics from the University of St. Andrews, and an MBE and a Clinical Ethics Mediation Certificate from the University of Pennsylvania. Her work has focused on mourning, melancholia, and metamorphosis in Classical literature; and on narrative ethics, narrative medicine, and mediation in the realm of bioethics. She is currently a JD Candidate at the Benjamin N. Cardozo School of Law in New York City.

 

Perspectives on Aging
What is “old age?”  How do we care for it, prepare for it?   Because collective wisdom is the richest, each meeting will be a roundtable discussion on the poems and prose excerpts assigned for that day.  Focus questions will include: the assumptions and observations we make about aging; personal aspects and ethical dimensions for the downsizing and diminishment inherent in aging; perspectives that savor each season as we inch toward “old age”; the roles that grief and beliefs about death play in aging.  Participants will give a five-minute presentation in the final class drawing on their cultural and personal perspectives.

Sally Edwards, MAT, MA, Chaplain, Monroe Village Continuing Care Retirement Community.  Sally has served for 20 years as a chaplain in nursing homes, rehabilitation facilities, hospitals, and residential and home-care hospices.  While Pastoral Associate at Christ Episcopal Church, she served on the Robert Wood Johnson Institutional Review Board.   Now retired, Sally continues as a volunteer chaplain to advocate for palliative and hospice care for residents in a Continuing Care Retirement Community.   She served on the 2011 and 2012 Yale Bioethics Center's Summer End-of-Life Issues panels “Mercy or Misery: The Impact of Communication on End of Life Care”, and led several Perspectives on Aging seminars using quotations from scripture, poets and essayists to focus discussions. 
 

 

Obesity and Bioethics
Obesity is widely referred to as an epidemic.  Some think obesity is genetic, others behavioral.  Should the government be involved or is it simply a matter of personal choice? Are individuals equipped to make informed decisions? This course explores the terrain of obesity facts and fictions, public heath ethics, and where responsibility lies when it comes to individual health.  The class will analyze case studies, scholarly journal articles, and public policies that are both already in effect and proposed policies regarding obesity and nutrition.  Students will be expected to participate in discussions and case studies, as well as complete brief, assigned readings prior to each session. 

Jack Brackney, Masters Candidate, Case Western Reserve University School of Medicine; Research Assistant, Center for Genetic Research, Ethics and Law, Case Western Reserve University School of Medicine. Jack received his BA from the University of Akron in Philosophy, Political Science, and Economics.  Currently he is involved in a research project exploring genomic medicine and medically underserved populations with a focus on issues of justice, access to health care and education, and influence on public health policy.  

 

Topics in Animal & Veterinary Ethics
This seminar will introduce participants to several important areas of animal & veterinary ethics including key ethical issues regarding the use of animals in biomedical research, food animal production and public health.  Related topics in veterinary medicine such as euthanasia, the human animal bond, and veterinarian-client-patient relationships will also be briefly explored.  Introductory readings and class materials are designed for students in a variety of disciplines and prior background in animal related studies is not required.   Format is highly interactive.  Overviews of weekly topic areas, including varying perspectives, will be offered at the beginning of each class followed by discussions around readings and class material.  Open dialogue, questions, and active group discussions are essential elements of this seminar.

Susan Kopp, DVM, Scholar, Yale Interdisciplinary Center for Bioethics; Professor of Health Sciences, City University of New York -- LaGuardia Community College.  A veterinarian and professor of health sciences in the veterinary technology program at LaGuardia Community College (CUNY), Susan is a Bioethics Center scholar and co-convenes the Center’s interdisciplinary scholars study group in animal ethics.  In 2010, while a visiting scholar at Yale, she developed and taught the first Bioethics Center summer seminar in veterinary ethics and animal welfare.  Susan earned her Doctor of Veterinary Medicine from Purdue University, a bachelor’s of science in biochemistry from Virginia Tech, and completed additional course work in religious studies at the Instituto Internazionale Mystici Corporis, Loppiano, Italy.  She has served as attending veterinarian for LaGuardia Community College’s Institutional Animal Care & Use Committee and is a past director of its veterinary technology program.

 

Ethics in the Emergency Room
The emergency department is a place where people are in times of their greatest medical need.  It is not surprising that emergency medicine physicians encounter ethical dilemmas, but it is rare to go a single 8 hour shift without facing a difficult non-medical choice.  Though rooted in the same principles of medical ethics, ethics in the ER has a different flavor to it.  Constraints of time, information, privacy and resources unique in an emergency setting alter the manner by which clinicians and ethicists should approach dilemmas.  This series aims to develop hands-on decision-making skills with discussion of common ethical challenges faced in the ER.  The short readings include relevant ethical or legal frameworks for each topic as well as a brief story or poem to set the tone for discussion.  Each seminar will consist of didactic learning for 20-30 minutes followed by more than an hour of case analysis and discussion.

Thomas E. Robey, MD, PhD.  Emergency Medicine Physician.  Senior Resident at Yale-New haven Hospital. Thomas is an emergency medicine physician-scientist who conducts both basic science and mixed methods based research to improve care received in the emergency department.  He studied bioengineering and the history and philosophy of science at the University of Pittsburgh, earned his MD/PhD at the University of Washington and will complete his emergency medicine residency at Yale in June of 2013.  His dissertation involved the optimization of human embryonic stem cell based treatments for cardiac repair.  Robey has designed and taught medical ethics courses to medical students, the curriculum of which include both principles- and casuistry-centered approaches to analyzing ethical dilemmas. Thomas is currently completing a Greenwall Foundation-funded project examining ethical issues surrounding radiation exposure from CT scans in the emergency department.

 

The Ethics of Disaster Law – Mitigation, Planning and Preparation
What is "disaster law" and what does it encompass?  Why is it important to examine this topic? What ethical principles should, and do come into consideration during the mitigation, planning and preparation phases of our response to disaster? The purpose of this course is to introduce the key ethical and legal issues intrinsic to planning and responding to natural disasters.  The course will focus on issues surrounding preparation, planning and response to natural disasters and will be examined from the perspective of different stakeholders including policy makers and the State, enforcement and emergency authorities, lawyers and the courts and the victims of natural disasters (with a particular focus on children).  The course is designed to encourage interaction and a practical focus on the issues and potential responses.  As part of the practical focus, students with a particular interest in the topics covered will be encouraged to develop an 'action plan' for a small project or paper based on what we cover in the seminar.  No prior experience in law is necessary although students are encouraged to concurrently enroll in "Bioethics and the Law". 

Laura Ballantyne-Brodie, BA, LLB (Hons) GradDip Legal Practice, Monash University - Attorney Baker & McKenzie LLP. A 2008 graduate of the Summer Program, Laura is a qualified Australian lawyer having been admitted to practice in August 2011 after graduating with a Bachelor of Arts (2008) and Bachelor of Law (2010).  Laura is an Associate at international law firm Baker & McKenzie practicing mainly in energy and resources law.  Laura worked with the United Nations Environmental Social and Cultural Organization (UNESCO) as a researcher in their South East Asian office in 2006 and again in 2011 to deliver the first youth forum to bring together youth who have experienced a natural disaster, called Looking Beyond Disaster.  For a number of years Laura has been interested in the intersection of ethics, public policy and the law and returns to the center to lead a seminar in ethics and disaster law.  

 

End-Of-Life Issues
This seminar series develops themes involved in each speaker's particular areas of interest.  Some leaders of this seminar will be giving morning lectures to all the students prior to giving more focused talks to seminar participants; therefore, some of the sessions will build upon these morning lectures.  Topics include: cultural dimensions of end-of-life issues; prognostication; what constitutes a "good death"; palliative sedation; so-called "death panels"; issues particular to infant deaths; grief; and religious issues at end-of-life.

Carol Pollard, MA, MSc, Associate Director, Yale Interdisciplinary Center for Bioethics.  Working on the formation of the Interdisciplinary Center for Bioethics, the Center made use of many of Carol’s past and present interests and then some. She worked in hospital administration for eleven years, where she became acquainted with ethical issues involving euthanasia, quality of life, abortion, doctor/patient relationships, and end-of-life decision-making. For ten years after that, she founded and directed an international human rights organization that dealt, for the most part, with issues involving prisoners that acquainted her with international ethical values concerning human life. The connection between these two areas—health/medical care and human rights—became very clear once she discovered the field of bioethics, and she has been happily ensconced in this area of study ever since.

Alex Dubov (see Stem Cells...)

Sally Edwards (see Perspectives on Aging)

Evie Lindemann (see Empathy...)

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2013 Participants

Naoko Akimoto
PhD at Tokyo University
Visiting Scholar at Washington University/ St. Louis, Missouri  
Bingham McCutchen Murase, Sakai Mimura Aizawa—Foreign Law Joint Enterprise, Associate Attorney

Ana Alberdi Luengo
Medical Student
European University of Madrid, Spain

Imre Bard
MSc in Cognitive Science
University of Vienna/ Austria
Research Assistant at the Department of Social Science, Health and Medicine, King’s College London; Research Officer at the London School of Economics and Political Science

Mohini Priya Banerjee
Philosophy and Logic
Smith College

Caroline Bass
Political Science
Case Western Reserve University

Sarah Elaine Blackburn
Juris Doctor Candidate
University of South Carolina School of Law
Law Clerk at J. Lewis Cromer and Associates

Tyler Bourgoise
Philosophy
Brown University

Ethan Campbell
Major in Political Science/ Minor in Music
Transylvania University

Juan Carmona
Graduate Student, Sociology
Southern Connecticut State University
Yale University Community Bioethics Forum

Sara Carrascal Seco
Medical Student
European University of Madrid, Spain

Amy Louise Constable
Bachelor of Arts/Bachelor of Science (Political Science, Health Medicine and the Body, and Environmental Policy)
Australian National University

Luis Coronel Tarancon
Medical Student
European University of Madrid, Spain

Laura Rebecca Dover
Juris Doctor Candidate
University of South Carolina School of Law
Control Room Technician for United Pharmacy Services

Teresa Echeverria Guibert
Medical Student
European University of Madrid, Spain

Theofilos El Sayed Omar
Medical Student
Keele University Medical School/ UK

Ines Esparragosa Vazquez
Medical Student
European University of Madrid, Spain

Ramona Leonora Fernandez
PhD in Health Professional Education
(Psychology, Thanatology, Reproductive Medicine, Bioethics & Biopolitics)
The University of Western Ontario/ Canada

Sebastian Charles Galbo
English/Philosophy at Niagara University
Cultural Studies at Dartmouth College, New Hampshire

Chloé Girard
Masters in Ethics (Theology, Bioethics, Philosophy and Sociology)
University of Strasbourg, France

Beatriz Guerra Buezo
Medical Student
European University of Madrid, Spain

Shahid Mahmood Gul
Assistant Professor, Department of Philosophy
University of the Punjab, Lahore, Pakistan

Jessica Hahne
BA in English
Yale University
Assistant at the Yale Interdisciplinary Center for Bioethics

Savannah Hartnett
Religion and Psychology
Florida State University

Maria Jimena Hernandez
Juris Doctor Candidate
University of South Carolina School of Law
International Relations at Mary Baldwin College

Laure Hoenen
Masters in Ethics, Masters in French Epistemology and Scientific Mediation
University of Strasbourg

Alexandra Houle-Dupont
The Study
Montreal, Quebec

Fei-Fei Huang, R.N.     
PhD Candidate in Nursing
Central South University, Changsha, China

Aissani Imane
Masters in Bioethics and Medical Ethics
University of Strasbourg, France

Matthew Kuan Johnson
Cognitive Science
Yale College

Jessica Garland Kelly
Juris Doctor Candidate
University of South Carolina School of Law
(Political Science and Finance at University of Florida)

Maria M. Kerr
Anthropology/Biology
Transylvania University

Paulina Agnieszka Knobloch
Biotechnology
Jagiellonian University/ Krakow, Poland

Benjamin Lieberman
Philosophy
State University of New York/ Geneseo

Daniel Livendahl
Medical Student
Lund University, Sweden
Deputy Managing Director, Kooperativ Bemanning AS

Maria Carolina Nascimento Maia
Juris Doctor Candidate
Fundação Escola Superior do Ministério Público

Himanayani Mamillapalli
Molecular Cell Biology and Human Rights
University of Connecticut

Brian Marcus
Medical Student
Yale University School of Medicine

Carter Randolph Massingill
Juris Doctor Candidate
University of South Carolina School of Law

Julia Catherine Formoso McGirr
Biology
Brown University

Gilan M. Merwanji
Juris Doctor Candidate (2015)
Masters of Social Work Candidate (2015)
Case Western Reserve University

Linnea Mary Michaels
Masters of Bioethics Candidate
Masters of Social Work Candidate
University of Pennsylvania

James Gerard Muller
Major in Political Science, Minors in Philosophy and Legal Studies
SUNY Geneseo

Patrick Nagel
Philosophy and Mathematics
TU Dortmund University, Germany

Rebecca Kendall Oliver
Double Major in Biology and Spanish
Transylvania University

Reina Ozeki
Department of Biomedical Ethics, Social Medicine
University of Tokyo Graduate School of Medicine

Joshua Page
BS in Biology, BA in Philosophy
Southwestern University

Stephanie Cristina Ferreira Paiva
Juris Doctor Candidate
Fundação Escola Superior do Ministério Público

Cristina Pardini
PhD Candidate in Private Law
Università di Pisa

Santiago Justin Peregalli Politi
Medical Student
European University of Madrid, Spain

Alicia Perez Blanco
MD, PhD (Critical Care Medicine)
Fundacion Hospital Alcorcon/ Madrid

Connie Phung
MS Healthcare Administration
Marshall University

Leo Polchar
Human Sciences
University College London/ UK

Sue D. Porter
Bachelors in Sociology/ San Diego State University, CA
Masters in Business Administration/ St. Mary’s College, CA
Masters in Bioethics/ Union Graduate College and Mt. Sinai Medical Center, NY

Brianna Kaitlin Rader
Premedical Student; Medical Humanities (“Holisitic Approaches to Healthcare”)
The University of Tennessee, Knoxville

Antonia Reitter
Juris Doctor; PhD Candidate  in Constitutional Law
University of Bonn, Germany
Research Assistant at the University of Bonn, Germany

Jessica Kirsten Richard
Bachelor of Arts/Bachelor of Law
Monash University

Tammy Cauley Rivers
Juris Doctor Candidate
University of South Carolina School of Law
Research Assistant at University of South Carolina School of Law

Olga Rosales Aedo
Medical Student
European University of Madrid, Spain

Jitka Rusová
Bioethics
Institute for Medical Humanities, First Faculty of Medicine
Charles University of Prague, Czch Rep.
Assistant at Faculty of Health Studies, University of Pardubice, Czech Rep.

Roberto Sanchez Sanz
Medical Student
European University of Madrid, Spain

Max Anthony Sauvé
Juris Doctor Candidate
University of South Carolina School of Law

Brian Rizzo Scales
Philosophy, Psychology, and Literature
Vanderbilt University

Elodie Schaffhauser
Medical Student and Master’s Candidate in Ethics
University of Strasbourg/France

Fang Shan, M.S.     
PhD Candidate in Bioethics
Central South University, Changsha, China Bioethics

Roberto Daniel Sirvent
PhD in Theology and Ethics
London School of Theology/ UK
Associate Professor of Political and Social Ethics at Hope International University/ US

Timothy Michael Smilnak
Medical Student
SUNY Upstate Medical University

Dawne A. Southworth
Bachelor of Science in Nursing
Husson University
United States Airforce Reserve, Technical Sergeant, Aerospace Medical Technician

Marta Spodenkiewicz
Specialization in Genetics at Reims University  and
Master’s in Ethics at the University of Strasbourg/ France

Rachel Tina Shan Mei Teo
Philosophy and Psychology
Monash University/ Australia

Joseph Alexander Vinson
Medical Student
The Medical College of Georgia

Matthew B. Weatherford
Major in Philosophy, Minor in Classical Studies
The University of St. Thomas/ Houston,Texas  

Christina Zorzano Martinez
Medical Student
European University of Madrid, Spain

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