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Yale Bioethics

Summer 2012

2012 Lecturers
2012 Seminars
2012 Participants

2012 Lecturers

Jonathan Borak
Clinical Professor of Epidemiology & Public Health and
Clinical Professor of Medicine, Yale School of Medicine
The Ethics of Risk Assessment

R. Douglas Bruce
Assistant Professor of Medicine (AIDS)
Yale School of Medicine
Ethical Dilemmas in Research Where Drug Users Are Concerned

Daniel Callahan
Senior Scholar and President Emeritus
The Hastings Center
Ethics and the Future of Medicine

Michael Cappello
Professor of Pediatrics, Microbial Pathogenesis and Public Health; Director, Program in International Child Health; Director, Yale World Fellows Program
Donor Responsibilities to Global Health Initiatives

Margaret Drickamer
Professor of Medicine, Program in Geriatric Medicine
Yale School of Medicine
Decisional Capacity

Thomas Duffy
Professor of Medicine; Director, Program for Humanities in Medicine, Yale School of Medicine
Reflections on Portraits of an Illness

Marianthe Grammas
Clinical Fellow, Geriatric Medicine,
Yale School of Medicine
How Informed is Informed Consent:
A case discussion on health literacy and decision-making capacity

John Grim
Senior Lecturer and Research Scholar, Yale University; Co-Coordinator, Forum on Religion & Ecology
Native American Religions: Toward an environmental ethic

Jacob Hacker
Stanley Resor Professor of Political Science; Director, The Institution for Social & Policy Studies, Yale University
The Political Battle over the Future of American Health Care

Marcia Inhorn
William K. Lanham, Jr. Professor of Anthropology and International Affairs, Yale University
Global Gametes: Reproductive “tourism” and Islamic bioethics in the high-tech Middle East

Shelly Kagan
Professor of Philosophy, Yale University
Applied Ethics and the Distinction between Killing and Letting Die

Dan Kahan
Elizabeth K. Dollard Professor of Law, Yale University
Science Literacy, Cultural Conflict, & Climate Change

Aaron Klink
Chaplain and Bereavement Coordinator at Amedisys Hospice in Durham, North Carolina
Bioethics between Baghdad and Bethesda:
Psychiatric ethics, politics, and post-traumatic stress

Kaveh Khoshnood
Associate Professor, Yale School of Public Health
Ethical Issues in Student-led Short Term Global Health Research Projects

Susan Kopp
Professor of  Health Sciences, Veterinary Technology Program, LaGuardia College (CUNY); Affiliated Scholar, Yale Interdisciplinary Center for Bioethics
Ethics, Animals, and the World We Share

Diane Krause
Professor of Laboratory Medicine, Pathology and Cell Biology, Yale University with
The Rev. Dr. Karen Lebacqz
 Bioethicist & Scholar
            Embryonic and Adult Stem Cells and Their Potential Clinical Use / Ethical Considerations

Stephen Latham
Director, Yale Center for Bioethics
Bioethics and the Law

Robert J. Levine
Senior Scholar in Research Ethics, Interdisciplinary Bioethics Center; Professor of Internal Medicine, Lecturer in Pharmacology, Yale School of Medicine
            Origins of the ethical norms and principles for
research involving human subjects
AND
Ethics of placebo controls in
research involving human subjects

Scott Long
Senior Physician, Connecticut Hospice;
Associate Clinical Professor of Internal Medicine, Yale School of Medicine
Evolution of Hospice in the United States
as a Reflection of the Times


Maurice Mahoney
Professor of Genetics, Pediatrics, and Obstetrics & Gynecology and Executive Chair, Yale University Institutional Review Boards, Yale School of Medicine
Influencing ("Designing" "Choosing") Characteristics of
Your Children When They Are Embryos or Fetuses


Mark Mercurio
Associate Professor of Pediatrics; Director, Pediatric Ethics Program, Yale School of Medicine
Ethical Issues in Extreme Prematurity

Karen Nakamura
Associate Professor of Anthropology and East Asian Studies, Yale University
Disability, Sexuality, Abortion, and Prostitution: oh my!

Timothy Nelson
Professor of Molecular, Cellular & Developmental Biology
Yale University
Agricultural biotechnology:
Potential for synergy between traditional and biotech methods in agriculture and food production


Sherwin B. Nuland
Clinical Professor of Surgery Emeritus
Yale School of Medicine
The Goodness of the Physician:
From Hippocrates to high-tech

Pasquale Patrizio
Director, Yale Fertility Center, Yale School of Medicine
Postponement and Preservation of Fertility:
Ethical and social implications  


Aron Rose
Associate Clinical Professor, Yale School of Medicine Department of Ophthalmology and Visual Sciences and Associate Clinical Professor, Yale School of Nursing
The Ethics Of Overseas Surgical Volunteerism

Lois Sadler
Professor, Yale School of Nursing; Yale Child Study Center
Adolescent Pregnancy & Parenthood:
Questions of prevention and intervention

Sally Satel
Resident Scholar, American Enterprise Institute;
Lecturer, Psychiatry, Yale School of Medicine
Organ Donation and Organ Trafficking:
Is donor compensation the solution?

Mary Evelyn Tucker
Senior Lecturer and Research Scholar, Yale University;
Co-Coordinator, Forum on Religion & Ecology
The Emerging Alliance of Religion and Ecology

Wendell Wallach
Lecturer and Scholar,
Yale Interdisciplinary Center for Bioethics
From Robots to Techno Sapiens: Ethics, law and public policy in the development
of robots and neurotechnologies

John P. Wargo
Tweedy/Ordway Professor of Environmental Health and Politics, School of Forestry and Environmental Studies
Food Security

Robert Wyman
Professor of Biology and Program Director for the Howard Hughes Medical Institute Undergraduate Science Education Program, Yale University
How Societies Control Population

Howard Zonana
Professor of Psychiatry, Yale Medical School;
Clinical Professor (Adjunct) Law, Yale Law School
Use of Forced Medication on Defendants and in Psychiatric Facilities

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2012 Seminars

Bioethics & the Law
This seminar will examine the basic treatment by American law of some major issues in contemporary biomedical ethics. Readings will include standard legal materials such as cases and regulations, a number of quasi-legal sources such as government commission reports and institutional guidelines, and some academic articles. No familiarity with legal materials is assumed; indeed, this seminar is designed for students with no background in American law. For each of the topics listed below, the instructor will offer a very broad and necessarily cursory overview of the area, and then will focus seminar discussion on one or two sub-issues to be addressed in detail. While the focus will be American law, some comparative-law readings will be supplied in order to bring possible alternative approaches to light. Topics include the basics of the US legal system; abortion; end-of-life care and aid-in-dying; assisted reproduction; stem-cell research; organ donation; research on human subjects; and health care reform.

Bioethical Issues and the Rights of Children
The evolution of public policy regarding the health and welfare of children has encountered tensions in the rights and responsibilities of children, their parents and the state.  This seminar series will consider the child’s perspective as students are asked to engage in discussions regarding the status of children, systems they collide with, and issues that impact their lives.  In the context of so-called rights, the discussion will explore child welfare, juvenile justice and education systems followed by sessions focusing on concerns of the day including medical decision making and response to bullying. 

Public Health Ethics
This seminar series will examine the ethical implications of some of the major areas of public health practice and policy. The format will be interactive. Each session will open with a brief presentation by one of the students of the group reading the assignment for that session followed by comments from the facilitators and open discussion. Topics to be covered include: analytical framework for public health ethics, ethical aspects of preparedness planning for public health emergencies, the genome and public health, mandatory vaccination of children and health care workers, environment and public health ethics, public health and socioeconomic health disparities. 

Living with Disability
The social value of people with disabilities is often reflected in bioethical discussions ranging from birth to end-of-life decisions.  This seminar series will strive to understand what it means to live a life viewed as de-valued and misunderstood by society.   Through the use of select readings, video, lectures and personal accounts, students will examine a variety of topics including:  disability law and deinstitutionalization; the gullibility that characterizes developmental disability; complications of sexual expression when residing in a congregate setting; issues of dignity in the promotion of curative research; and perceptions of suffering in consideration of assisted suicide.

Empathy and the Practice of Medicine
We will examine medical ethics policies, landmark clinical trials, and specific patient cases through the lens of empathy.   This seminar series will include facts-based discussions about the topics and the bioethical issues involved – but will also include the practice of personal reflection as well as experiential tasks to facilitate integration of both the cognitive and emotional domains related to empathy.  Our discussions will be enhanced by a visit to the renowned Cushing Library at the Yale School of Medicine; all other sessions will be held at the Yale University Art Gallery since those seminars will be enhanced by guided discussions of relevant pieces of art from the Collection.  This approach - and the class content - may be particularly relevant for those who are interested in practitioner roles (including medicine, nursing, and chaplaincy) as well as those who approach bioethics from a policy perspective. 

Ethical Issues in Organ Transplantation and Allocation
Organ transplantation has been hailed as an extraordinary leap in medicine and surgery, but thousands of individuals continue to die every year waiting for an organ transplant.  In this seminar we will examine and debate current issues regarding organ transplantation and allocation.  Should everyone be required to be an organ donor unless they have compelling reasons to opt-out?  What sort of criteria ought to be applied in order to determine who receives priority?  Is it ever permissible to take organs from those who cannot give full consent?  How are these questions addressed internationally?  Each session will begin with a broad overview of a particular debate in this area; a guest speaker will then present a paper on the topic, and discussion will follow.  Guests from the Yale-New Haven Hospital and the Yale School of Medicine will address US policies regarding organ transplantation and allocation.  Other speakers will address the international issues.

Purposeful Creativity in Life/Work & Ethics 
Creativity is a human urge that seeks and deserves expression. It is about imagination and the way we think and act. Creativity is a skill that can be developed and harnessed to help us think in new ways, imagine better solutions and see creative alternatives. In this series, we will explore what creativity is, how to apply it to improve problem solving and decision-making in ethics, and how it helps us discover purpose and engage in meaningful expression in our life/work. Come and practice the paradoxical art of being playful and serious at the same time, while we apply creative thinking tools and processes to ethics, work and life.

An Introduction to Ethical Theory
Our lives are full of choices to be made, ranging from trivial day-to-day choices to profound, life-shaping ones. How should we choose? More broadly, how should we live? And why should we live that way? The goal of ethical theory is to arrive at an answer to these daunting but pressing questions. This seminar is a “crash course” to ethical theory. In our six sessions, we will examine and discuss the structure of ethical theories, key concepts in ethics, historically influential ethical theories (including egoism, utilitarianism, Kantianism, and virtue ethics), different methodological approaches to ethics, and various views about human well-being. In each session, there will be time devoted to engaging in ethical argument and theorizing ourselves. In other words, we will do philosophy, and not merely learn about it. Modest supplementary readings will be assigned. No prior experience with philosophy or ethics is required.

End-of-Life Issues
This seminar series develops themes involved in each speaker's particular areas of interest.  Some leaders of this seminar will be giving morning lectures to all the students prior to giving more focused talks to seminar participants; therefore, some of the sessions will build upon these morning lectures.  Topics include: cultural dimensions of end-of-life issues; prognostication; what constitutes a "good death"; palliative sedation; so-called "death panels"; issues particular to infant deaths; and religious issues at end-of-life.

Feminist Ethics
Feminist contributions to bioethics are many and varied, yet strangely neglected by “mainstream” theorists. This course will examine different voices within feminism and their contributions to method and substance within bioethics. Is there a distinctive feminist “way” of thinking or of analyzing bioethical issues? Are there any conclusions on which all feminists agree? What happens when topics are seen through a feminist lens? Through an examination of five issues—abortion, justice in health care, new reproductive technologies, disability, and psychiatry, we attempt to define and explore the meaning and importance of feminist theory in bioethics.

Examining Reproductive Ethics
There are a variety of topics that capture bioethical interest these days, but none as widespread as that of reproduction. Reproductive ethics has always been one of the forefront issues discussed in bioethics, whether it be abortion, surrogacy, or in less obvious areas, such as stem cell research and cloning. Questions concerning the morality of treatments and procedures related to reproduction continue to be debated in classrooms and government alike.  As medicine advances it draws new technologies and new ethical dilemmas into the mix.  This seminar will focus on those bioethical issues that are primarily related to treatments and technologies that are designed to both help and hinder the reproductive process in humans. Leaving behind the classic cases of concern such as abortion and surrogacy, we will focus more on the contemporary issues of assisted reproduction, embryo donation, stem cell research, as well as emerging fields such as oncofertility. This will be an interactive class where students will participate fully in discussions, as well as debates and presentations.

Bioethics Across Religious Traditions
This seminar will cover the basic bioethical issues and how different religious traditions and people address them. Throughout the seminar, we will keep in mind that the status and value of the body and existence of a spirit or soul deeply affects how religious traditions and people will interpret biological, medical, and health care issues. Key topics will include “theological anthropology,” belief in an afterlife and its impact on decision-making, different religious values on compassion and suffering, and religious ideals of healing and ministry.

Environmental Ethics
This introduction to environmental ethics first surveys the theory of philosophical ethics as it relates to the natural world, and then explores the practical implications of such theory’s administration. Our class will consider various theoretical attempts to expand standard ethical models to incorporate nonhuman life into frameworks of moral concern, as well as the ethical ramifications when these models are applied to solving contemporary environmental crises. Topics include: nature and philosophical consciousness, wilderness, intrinsic value, non/anthropocentrism, land ethics, ecofeminism, deep ecology, environmental justice, climate change, ecological restoration, and sustainability.

Medical Ethical Debates in Popular Culture
This course seeks to evaluate medical ethical issues from the perspective of modern popular culture. Many of the topics covered in other seminars this summer (including, but not limited to, general ethical principles, ethics in law, rights-based ethics, ethics at the end of life, research ethics, and ethics in film and literature) will be discussed in this class, but with the particular lens of their treatment within a pop culture reference.  This seminar is intended to be interactive: while students will be asked to read various selections from literature and academia in advance of the class, the ultimate purpose of the readings will be to provide a background from which to begin class discussion. To this end, selections from contemporary films and television programs will be shown in class in order to further stimulate the interactive exchange. The diversity of student backgrounds (including academic discipline) should prove useful as we consider the various intuitions expressed in class. No prior medical ethical or philosophical background is required—just a general desire to read, watch, and discuss!

Neuroethics
This seminar will examine ethical and social issues raised by developments in the neurosciences. Topics will include court-ordered cognitive neuroscience interventions; issues of privacy and stigmatization; incidental findings in brain scans; cognitive remediation training programs; and “off-label” usage of fMRI as a “mind-reading” technology.  Guest speakers from Yale School of Medicine will present case studies of pressing issues within these subject areas.

Animal Ethics
This seminar series will focus on several key areas of veterinary medical ethics and animal welfare.  After a brief overview of the field of animal ethics and major animal welfare concerns, individual sessions will be theme - centered: the use of animals in biomedical research; current ethical dilemmas in veterinary medicine including animal euthanasia; ethical issues in food animal production and public health; the veterinarian – owner -- patient relationship; and the moral status of animals.  The format will be interactive with brief, session related readings provided in advance, in order to facilitate active group discussion.

Self-Determination
What does self-determination have to do with ethics anyway? This course seeks to explore the key role of self-determination skills (individual and/or group) in our lives’ journey. The seminar is divided in six units and is designed to assist the students in experiencing alternative ways of thinking through exploring individual and team self-determination skills development.  Creativity and thought provoking exercises will be some of the learning tools used during the class. The primary learning goal of this course is to discover, if and how, self-determination can be an empowering tool that can help us find the wisdom we need to create and maintain a more ethical approach to life for all on this earth.

Narrative Medicine
This seminar will explore the relationships among narrative medicine, narrative ethics, and mediation – three seemingly separate disciplines that, in fact, overlap significantly. A unifying thread, as we shall see, will be the telling and receiving of narrative: how to relate one’s story and how to hear others’.

Perspectives on Aging
This seminar will be taught by three instructors. 
Sally Edwards will discuss, what is “old age?”  How do we care for it, prepare for it?  Each of the first three June seminars will be based on poetry and brief prose selections, and because collective wisdom is the richest, each presentation will be designed to elicit questions and discussion.   Where We Do Not Want to Go (June 8th) will question the assumptions and observations we make about “old age.”  Home Sweet Home (June 15th) will focus on the personal aspects and ethical dimensions of the downsizing and diminishment inherent in “old age.”  Carpe Diem (June 22nd) will examine perspectives that savor every season as we inch toward “old age”. Marianthe Grammas will discuss sexuality in older persons from a biopsychosocial perspective; how normal aging physiology affects sexual practice/behavior; and ethical dilemmas related to sexual behavior that are encountered in older persons with cognitive impairment/dementia. The Rev. Dr. Linda Smith-Criddle will narrate the experience of her mother's falling victim to dementia. The presentation is entitled "A Peculiar Grieving", a unique and painful consequence for caregivers and those who mourn the loss of a loved one, who has already departed in one sense, but who in another has distinctly not yet left this fragile orb.

Bioethics in the Media
What makes a good bioethics story?  Are there attributes besides those found in quality health care or science journalism?  What counts as “bioethics” and who qualifies as a “bioethicist” in popular media?  Who speaks for patients, the professions, the academy, the health care industry, the government, religious denominations and other stakeholders in bioethics debates?  We’ll consider these questions while sampling some past and current controversies in bioethics (with an emphasis on the biomedical).  We’ll take a critical look at the media coverage of suicide and the so-called Werter effect (does more reporting on suicide mean more suicides?).  We’ll look at the media’s role in creating diseases and marketing cures and examine the coverage of organ transplantation, multiple births and somatic treatments in psychiatry, such as electroconvulsive therapy and psychosurgery.   We’ll also examine the media role in the long-festering controversy over the putative link between vaccination and autism.  Approximately a third of class time will be devoted to discussing student work, offering participants a chance at writing for a non-professional audience.

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2012 Participants


Mena Joseph Abdelmalak
Biological Sciences/Pre-Health Specialization
The Ohio State University
Gala Vega Achábal
Medical Student – 4th Year, Dept of Biomedical Sciences
European University of Madrid, Spain
Inés Perezpayá Alonso
Medical Student – 3rd Year, Dept of Biomedical Sciences
European University of Madrid, Spain
Pia Andrighetto
BA (Philosophy) and Bachelor of Business (Marketing)
Monash University, Australia
Csaba Bardossy
Faculty of Law, Medicine
Pazmany Peter Catholic University, Hungary
Kathrine Barnes
Doctoral Candidate
Maxwell School of Syracuse University, Department of Family Medicine, SUNY Upstate Medical Center
Hanane Karimi Bensalah
Master of Arts in Ethics
Strasbourg University, France
Jenny Benson
Public Health
The George Washington University
Florent-Alain Bikini
Masters in Ethics/Masters in Catholic Theology
Strasbourg University, France
Ana Caroline da Costa e Fonseca Berlin
Professor of Philosophy, Public Prosecutor’s Law School
Federal University of Rio Grande du Sul, UFRGS, Brazil
Izabella Borek
Graduate Student, Biotechnology
Jagiellonian University, Poland
Jack E. Brackney
BA in Economics, Political Science, and Philosophy
The University of Akron
Carrie Anne Burt
Biology
Transylvania University
Nicholas Caros
Bachelor of Arts, Philosophy and Pre-Law
Columbia University
Maribel Yerena Castillo
PhD Candidate, Department of Philosophy
University of Malaga, Spain
Yichen Chiu
MA in Bioethics
New York University
and
Biomedical Ethics Research Unit
Center for Translational Science Activities, Mayo Clinic
Praveena Krishnamurthy Deekonda
BSC Life Sciences
McMaster University, Canada
Claire Dennis
Bachelor of Arts in Political Science
Yale University
Oliver Devine
Medicine (Third Year)
Keele University, England
Alex (Oleksandr) Dubov
Doctoral Candidate in Health Care Ethics
Duquesne University
Mia Engstrom
Medical Student
Lund University, Sweden
Kyle William Fitzpatrick
English/Philosophy
Purdue University
Jimena Laiseca García
Medical Student – 3rd Year, Dept of Biomedical Sciences
European University of Madrid, Spain
Zacharoula Gkotsi
Bachelor of Arts in Ethics, Politics & Economics
Yale University
Andy Sim Gim Hong
Master of Social Work
New York University
Donna Eileen Hanrahan
Political Science
State University of New York/Geneseo
Mi Hu, MD
Department of Social Medicine and Health Management, School of Public Health
Central South University, China
Camila Idrovo
Science, Technology and International Affairs
Georgetown University School of Foreign Service
Alexis Kaiser
Biology and Psychology
Anderson University
Fouzia Kazim
MA and MPhil in Philosophy, Dual Masters in Bioethics
Linkoping University, Sweden
Utrecht University, The Netherlands
and
Chairperson, Philosophy Department
Government Viqar-un-Nisa Postgraduate College for Women, Pakistan
Edward Larkin King, RN, JD. Ed.D
Post-Doctoral Fellow and Associate Professor – Allied Health, Nursing Unit
Hostos Community College, CUNY
Xing Liu
PhD Candidate in Bioethics, School of Public Administration
Central South University, China
Juan Carlos Lopez-Vila
(university to be determined)
Assistant for the Summer Institute
Boris Lopicich
Universidad Diego Portales (Law)
Pontificia Universidad Catolica de Chile (Philosophy)
Researcher at NGO Institute of Development and Equity, Santiago de Chile
Montserrat Hernández Martínez
Medical Student – 3rd Year, Dept of Biomedical Sciences
European University of Madrid, Spain
Sri Vamshi Merugumala
Medicine (Third Year)
Keele University, England
Patrick Nagel
Biology and Philosophy
Jagiellonian University, Poland
Kyle Oskvig
Bachelor of Arts in Classical Languages, Philosophy
University of Iowa
Francisco Javier Tejero Pintor
Medical Student – 4th Year, Dept of Biomedical Sciences
European University of Madrid, Spain
Christine P. Powers
Philosophy and Psychology
Stonehill College
Mir-Muhammad Razavi
Masters in Theological Studies
Harvard Divinity School
Isabel Carriles Rivero
Medical Student – 3rd Year, Dept of Biomedical Sciences
European University of Madrid, Spain
Alexander Harding Rowan
English Literature and Biochemistry
University of Colorado at Boulder
Karl Alexander Schmitt
Neurobiology
Transylvania University
Emily Marie Shepp
Philosophy and Political Science
Transylvania University
Santa Slokenberga
LLM (Distinction) Medical Law and Ethics
University of Kent, England
and
Doctoral Candidate in Medical Law
Uppsala University, Sweden
Adrienne Spiegel
Philosophy
Yale University
Tsion Tesfaye
Political Science and Public Policy
Virginia Commonwealth University
Srigowtham Thakku
National University of Singapore
Yale University
Margo Uhrman
Psychology
Case Western Reserve University
Mohammad Usman
Bachelor of Arts in Urban Public Policy & Conflict Studies
Depauw University
Xiaomin Wang, PhD
School of Public Administration
Central South University, China
Hannah Elizabeth Winterton
Medicine (Third Year)
Keele University, England
Li Xin, MD
Department of Hematology, 3rd Xiangya Hospital
Central South University, China
Kavot Zillen
Postgraduate Studies (LLD in medical law)
Uppsala University, Sweden

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