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Yale Bioethics

CARE Conference

 

Community-Based Research: New Ethical Challenges

May 21, 2009

Members of the conference planning committee (Jean Larson, Lois Sadler, Donna LaPaglia, Steve Updegrove, and David Smith) with keynote speaker Jeremy Sugarman.

Click here to access resources from this conference

Click here to read the summary report of the conference [PDF]

Responsible treatment of research subjects is one of the cornerstones of modern biomedical ethics. Recently, many researchers and ethicists have stressed the fact that communities as well as individuals have a stake in research. Communities may be adversely or positively affected by research; they have distinctive moral standards that must be taken into account, and they are an important resource for the design and initiation of research.

With generous support from the Patrick and Catherine Weldon Donaghue Medical Research Foundation, the Yale Interdisciplinary Center on Bioethics and CARE hosted a one-day conference at Yale University in New Haven, CT on ethical principles and guidelines for engaging community and university partners in the conduct of community-based research. This was an opportunity to bring together representatives from the Clinical and Translational Science Award (CTSA) sites, community and university representatives of institutional review boards (IRB’s), and, community agency leaders responsible for reviewing research in their agencies.

The conference was designed for active engagement of all participants in four concurrent working group sessions, each with a specific objective. The groups developed concrete recommendations in these four areas to meet the overall objective of identifying strategies to enable true community-university partnerships in research. 

CARE supported in part by CTSA Grant Number UL1 RR024139 from the National Center for Research Resources (NCRR), a component of the National Institutes of Health (NIH). YCCI is a collaboration among the Yale School of Medicine, the School of Public Health and the Yale School of Nursing.